Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-05-2016, 09:50 AM #1
Always_Believe Always_Believe is offline
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Originally Posted by -Spike- View Post
Wow, that must be so hard to not be able to take any meds, due to a lack of tolerance. I can definitely relate to that to a degree. There is a whole list of medications that helped me, yet the side effects were so harsh that I simply could not take them. It took me a very long time to sort through all of the meds that we tried in order to find the few that I can take without too many harsh side effects.

Question: Have you ever tried Voltaren Gel? It is a topical gel and is very good at reducing pain for me. There is also a Ketamine gel mix that works wonders for many people too. Maybe those would work, since they are not ingested.
Most of the meds are due to ineffectiveness. I've asked my docs for compounding creams, muscle relaxers, anything. Gaba didn't work & caused 40 pound weight gain; Lyrica is not covered; meloxicam caused mouth sores; amitriptyline/cymbalta not effective; ibuprofen ate my esophagus. What has worked even on a moderate level, they won't prescribe. I've had arthroscopy, steroid injections (knee), euflexxa injections (knee). I don't really want to do the LSB's more because I have a problem with how that was all handled but I am willing to try anything. Just can't get any docs to play along with the insurance.
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Old 01-05-2016, 10:16 AM #2
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Originally Posted by Always_Believe View Post
Most of the meds are due to ineffectiveness. I've asked my docs for compounding creams, muscle relaxers, anything. Gaba didn't work & caused 40 pound weight gain; Lyrica is not covered; meloxicam caused mouth sores; amitriptyline/cymbalta not effective; ibuprofen ate my esophagus. What has worked even on a moderate level, they won't prescribe. I've had arthroscopy, steroid injections (knee), euflexxa injections (knee). I don't really want to do the LSB's more because I have a problem with how that was all handled but I am willing to try anything. Just can't get any docs to play along with the insurance.
Errrrrr, Insurance!
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Old 01-05-2016, 10:22 AM #3
Always_Believe Always_Believe is offline
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Errrrrr, Insurance!
At the risk of sounding like a bigger whinner, I'm not sure I am wanting to attempt another medication with "weight gain" as a common side effect. Seeing as this is a weight bearing joint/limb I cannot see another 10 pounds (or more) being a good thing. I gained 18 pounds in 2 weeks on my last gaba run.
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