Frogga, please let us know how it goes at the ns, I'll keep my fingers crossed for you. I imagine you're quite emotional about it, I would be. It sucks so bad to have to relive your experiences with yet again another new dr..

The traffic is going to be awful with that high a security level, I agree with the suggestions you take all the meds you can before leaving the house... with spares for later, lol. I always take max everything before I go, it helps me cope. I can stay more analytical and logical, without all the emotion making it more difficult to communicate.

Michael and I had to deal with the post-9/11 crossings at the u.s.-mexico border in san diego. The biggest problem for me was being in line for many many many hours, with NO access to bathrooms

Well with Pn that can be a little hard,i've never tried crossing my eyes.
Ok i have and i just keep thinking my Mom is going to send some thunder.
she was so sweet but very much agains't crossing our eyes. I
hope you and Mum have a safe trip and help from your NS. Many Blessings
and Sue

Hey there Frogga, I'd cross my toes for you too but they hurt too much! I'll be thinking of you though and hope you get some good news for a change. Don't give up on the doctors though. I know it is hard but there really are some good ones out there. As you probably remember I went to ten before finding one. I guess you have to kiss alot of toads before you find a Prince. please let us know how it goes. jeannie

Hi,

Well. It was appalling..

When we got to the railway station mum smacked my hip really hard on the car door when she was lifting me out of the car, so that didn't start the day off that well! Then went into the station and discovered they'd lost my piece of paper which says I am allowed to take my wheelchair on the train. Finally arrived in London (after threatening the guards on the station) to discover it was pouring in rain and that because of the wheelchair taxis wouldn't take us.

FINALLY got a taxi to agree to take us and went up for my appointment. I hated the doctor on first sight and was abit surly. He was horrific! Apparently I definetly have RSD and RSD dystonia but he doesn't think I have "generalised" dystonia as a secondary disease (Which I knew), but he believes there are more important neurological components as my reflex tests were abit weird. He wants to admit me for 6 weeks to try and find out what is happening, with MRI's, CTs, spine taps, EMG's and anything else he thinks of and also I can then have physio and psychological support. HAHAHA. (Apparently I am too blase about being ill and don't take it seriously enough, yet 2 seconds later he said I should relax - he wasn't going to hurt me).

So... he lied. Basically. I refused to allow him to use tendon hammers, pins or anything else, so he just did it anyway and just sat there and watched me in tears whilst he did it. He finished and then said "that wasn't too bad was it?". Er it was.

I am so fed up with all of this. I don't care if I have MS, MD or whatever else he thinks is wrong with me. I want treatment and I want to get on with my life and never have to see another doctor again.

I don't think it helped that I called him a useless, arrogant a"$hole who I hadn't wanted to see anyway.

I can't believe he was willing to inflict that level of pain without permission, and refused to listen to me. So just imagine the letter that is going to be sent back to him from me.....................

I just can't handle anymore of this. It is driving me nuts. I hate doctors, I hate hospitals and I just want them to go away.

Love ya

Froggsy xxxxxxxxx

Aw Honey, I'm so sorry he put you thru all that. I was hoping maybe he had at least 2 functioning brain cells close enough together that they could communicate with each other. Sometimes we just hope. You had me laughing my butt off picturing you telling him off. I love it. What are you going to do next? there has to be someone who can help you. If anyone deserves decent treatment it is you. You are always up and always have your humour. Don't ever change.

Mary

Sweetie, I am sending you the ((((hugest hugs))))!! Hang in there. That's awful!!

Lots of huggies for you,

Love ya!

Nessy

Dang, Frogga, that sucks! I had sooo hoped it would be a good appt.... but I wasn't holding my breath, either, lol.

You can always tell a dr. that has never experienced true pain, or hasn't had a loved one hurt this much, from one that has. It really makes ya wanna grab a pair of their forceps and pinch them where it matters most! Grrrr.

So where does that dr. get off doing the things you told him not to?!? Touching someone in a way they don't want to be touched is called "assault" here... and even drs. can go to jail for that. Here, they just put "uncooperative patient" in your chart, lol, and don't do what you ask them not to. (Or maybe that's just me... I'm pretty sure they know I am going to knock them into next week if they do something I don't want them to.)

You DO have a choice whether you see him again or not, right? I'd hate to think they'd force a dr. like that on you, but I know next to nothing about your health care system.

Have some gentle hugs and a spoon or two... I can do without them.

So sorry you had such a horrid time of it, Frogga. I was hoping good things for you. But, please don't give up trying to find a decent doctor. You are much too young to be going through all this. I know you are tired of all this but there really are good docs out there. So, take a mini doctor break and try again. In the meantime you will be in my thoughts. Jeannie

Frogga,
I'm sorry to hear of the awful day you had. I had hoped it would have gone so smoothly for you...
Wishing you better days ahead...
Big Gentle Hugs to you
Dawn

Hi ya Frogga! I too like, Mary was laughing at your humor there, Missy Frogga, I feel so bad for you!! Are you going to go into hospital? Please know that we all love you so much and I too hate Doctors. Your so very young to be experiencing all this darn, darn pain!!You have and still are going through so much! Some doctors are very good. Look at how all of you told me NOT to give up hope at finding a good bedside mannered pain management doctor.. and I DID! I too hate hospitals, Frogga. Ya can't sleep, they are constantly taking blood.. blah blah. But if your Doc. feels that you should be admitted, tell him ok.. but as long as he doesn't see you while in there and another good hearted doc. will see you! I love ya girl.. you take care, and please keep us informed as to what your gonna do?? I say GIT YOU ANOTHER DOC!! Love, Desi and here are lots of gentle coming your way sweetie!