Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-15-2016, 01:48 PM #1
scubaforsythe scubaforsythe is offline
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Join Date: Feb 2015
Location: NW Ohio
Posts: 63
10 yr Member
scubaforsythe scubaforsythe is offline
Junior Member
 
Join Date: Feb 2015
Location: NW Ohio
Posts: 63
10 yr Member
Confused SCS Implant.. **Yikes**

Hi all,

I have not been on here in quite some time, been busy trying to get this under control. I have missed reading how everyone was doing, and all the good info I would get every time I would log on...

Here is what is going on with me, and some questions, if anyone has any info???

I have had a few blocks done, and they helped for 4-5 days, then a switch would go off and the lava flow would begin again. At one point, my pm had me doing a block every 3 days, for a total of 3 blocks in a row. That was miserable and I wouldn't suggest it!! The pm believes because I did get some relief from the blocks, the SCS implant will be beneficial to me, and may allow me to lower or even eliminate my Lyrica and allow me to get back to some kind of work.

My issues, concerns, and questions to all of you are:

1. I'm partially paralyzed on my left side due to a stroke at age 7, so somebody messing with my spine, putting something electrical near it, kind of gives me a "OMG WHAT, faint.... pause", so saying I'm scared is putting it mildly.

2. Does this thing last, if it doesn't, will they take it out??? I have had nightmares.... all I'm saying...

3. I'm off work (a workers comp case, RSD was diagnosed shortly after surgery to repair my shoulder), because the RSD takes away my only arm that works, and even typing this, has been a challenge, the RSD has spread to my face (right side), what if this only works for awhile, and quits after I go back to work.....

4. I'm scared, I'm sad, and I really don't want to do this anymore!!!

to all
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