Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-06-2007, 11:46 AM #1
sue k sue k is offline
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sue k sue k is offline
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Join Date: May 2007
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Hi,
I have many blocks over the last 7 years. Some have been ok and some like you said just hurt so bad. After so many docs at the pain clinic I found one that can do it with only a little discomfort.
Its hard to stop working. I worked until the day I just couldn't any more. i also worked beause of my house but that isn't working out. We are in the process of losing it now. My husband is also disabled. Social security was a hard fight for us. No income for over a year. But as with drs you have to find the right person at SSI. they can put you on an emergency program where they give you a check until they decided your case. I didn'tfind out about it until it was too late. they don't tell you everything they should. things you are entitled too. Hang in there. This is a great place to come for help.

Sue K.
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Old 07-06-2007, 02:38 PM #2
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fmichael fmichael is offline
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Just a quick heads up on ketamine therapies. I know from personal experience that The Mayo Clinic in Rochester MN will only do it for patients who live in the area because of the neeed for periodic follow ups. It is my understanding that some other places like Drexel in Philadelphia are less picky, and will let people from out of the area come back for boosters if they are willing to travel.

Mike
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