Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-17-2016, 10:34 PM #1
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After spending the entire day on the phone, researching, and eventually just feeling completely defeated, we apparently have one of a few choices. We have been on a plan from the Marketplace since my husband is self-employed, and the company I work for only has 4 employees so we let our insurance program go back in 2008. My husband's company still has not fully recovered from the economic problems a few years back, but with my income, we have been able to get by.

We have a few options, of which, none of them are really all that good. We can both go on Medicaid, where I will have a tough time getting the care that is needed. It's not that I can not receive the care, I will just have to fight a lot harder for it. We can pay the full price for a plan without any tax credits applied, which unfortunately is not an option due to our finances. The last option is that my husband will go on Medicaid, and I will re-apply for a plan at full price. If that last choice is actually an option will take a few more phone calls later on tomorrow. The way things were explained to me earlier today were a little confusing and need some more clarification before we can make a choice as to what we will do. It was explained to me that because our taxes are filed jointly, we both would have to purchase a plan, or both go on Medicaid. That doesn't make a lot of sense to me, so tomorrow I will call the marketplace to see if I can get some real answers.

I know so little when it comes to insurance. It can be so frustrating trying to figure all of this out when it was thrown at us out of no-where.
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Old 02-17-2016, 10:50 PM #2
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Originally Posted by PurpleFoot721 View Post
After spending the entire day on the phone, researching, and eventually just feeling completely defeated, we apparently have one of a few choices. We have been on a plan from the Marketplace since my husband is self-employed, and the company I work for only has 4 employees so we let our insurance program go back in 2008. My husband's company still has not fully recovered from the economic problems a few years back, but with my income, we have been able to get by.

We have a few options, of which, none of them are really all that good. We can both go on Medicaid, where I will have a tough time getting the care that is needed. It's not that I can not receive the care, I will just have to fight a lot harder for it. We can pay the full price for a plan without any tax credits applied, which unfortunately is not an option due to our finances. The last option is that my husband will go on Medicaid, and I will re-apply for a plan at full price. If that last choice is actually an option will take a few more phone calls later on tomorrow. The way things were explained to me earlier today were a little confusing and need some more clarification before we can make a choice as to what we will do. It was explained to me that because our taxes are filed jointly, we both would have to purchase a plan, or both go on Medicaid. That doesn't make a lot of sense to me, so tomorrow I will call the marketplace to see if I can get some real answers.

I know so little when it comes to insurance. It can be so frustrating trying to figure all of this out when it was thrown at us out of no-where.
Errr, how frustrating! Hmmm? I don't understand the joint insurance thing. You may want to investigate that a little more by talking to an insurance rep rather than the good Ol' Government of the U.S of A! Our society is getting so complicated. It is ridiculous. And the thing is, This is really really important. Wouldn't it be nice if there were a medical advocate for CRPS patients? A person like that would be invaluable in our society I would think. *SIGH* I hope everything works out. Please! Please keep us posted.
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Old 02-17-2016, 11:07 PM #3
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Quote:
Originally Posted by PurpleFoot721 View Post
After spending the entire day on the phone, researching, and eventually just feeling completely defeated, we apparently have one of a few choices. We have been on a plan from the Marketplace since my husband is self-employed, and the company I work for only has 4 employees so we let our insurance program go back in 2008. My husband's company still has not fully recovered from the economic problems a few years back, but with my income, we have been able to get by.

We have a few options, of which, none of them are really all that good. We can both go on Medicaid, where I will have a tough time getting the care that is needed. It's not that I can not receive the care, I will just have to fight a lot harder for it. We can pay the full price for a plan without any tax credits applied, which unfortunately is not an option due to our finances. The last option is that my husband will go on Medicaid, and I will re-apply for a plan at full price. If that last choice is actually an option will take a few more phone calls later on tomorrow. The way things were explained to me earlier today were a little confusing and need some more clarification before we can make a choice as to what we will do. It was explained to me that because our taxes are filed jointly, we both would have to purchase a plan, or both go on Medicaid. That doesn't make a lot of sense to me, so tomorrow I will call the marketplace to see if I can get some real answers.

I know so little when it comes to insurance. It can be so frustrating trying to figure all of this out when it was thrown at us out of no-where.
I am currently on medicaid and have been since Nov 2014. While I do not know how much is different state to state, I can offer some insight with how it is in IL.

Personally, I think that may be a better option considering the financial aspect. Yes, finding MD's who accept your medicaid plan can be a bit tough. You could check with your doctors to see which (if any) medicaid plans they accept. "Medicaid" is not simply "Medicaid" anymore. You have several "insurance plans" to choose from. When a disability is in play, it may be different options (mine changed once I was declared 'disabled' by federal & state agencies). I did a quick search and see MI offers different plans by county.

I could go on but would rather not throw more generalizations into the mix but I am happy to answer any questions I can!
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Old 02-17-2016, 11:22 PM #4
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Thank you Always. That was the first thing that I did. I checked the plans available in my County then called my PCP and PM to find a plan that both of them take if we decide to go that route. The more we talk about this, the more it looks like Medicaid is the way that we are going to have to go.
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