Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2007, 06:57 PM #1
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Default I had my ganglion neck block

Hi everyone.
Well, I had my neck block and it wore off(the pain) in 5 hrs)!! I go for 2 more on May 8th. and May 15th. I thought this block would last longer!!! how long does it take?? will the 2nd and last block help?? thanks! Desi p.s. I am so hoarse and I have bruising and pain from the injection site!! :0(
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Old 05-01-2007, 08:51 PM #2
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Hi Desi--Well, everyone responds a little differently to the blocks, but don't get discouraged!

In my case, I found the first block wore off pretty rapidly as well. The second block lasted longer, and the third block even LONGER. It was as if each block "boosted" the effects of subsequent blocks.

It was explained to me that the pain that came back (which really felt worse than it did originally) , was "re-bound pain". I found that I did not experience this phenomena as badly with the subseqquent blocks.

It is really very fortunate that you have a Doc who is ON TOP of things, Desi, particularly getting you scheduled so promptly for the series of three blocks.

I am curious--did your Doc discuss with you having Physical Therapy in conjuntion with your nerve blocks?

The reason I ask is that my Doc has always told me how very important it is do do my exercises after the blocks, and to take advantage of the pain reduction from the blocks. I have found that doing my exercises has really helped keep the swelling and stiffness down. However, my case might be diffferent from yours.

Oh-- re the hoarsness, etc--I found that this resolves totally within about 12 hours, and the neck pain from the injection should feel MUCH better by tomorrow. I use ice on my neck, which helps (no RSD THERE, thank goodness!)

In either event, I hope that the next nerve blocks really help get that RSD under control for you, Desi!!

Most Sincerely,

Brokenwings
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Old 05-01-2007, 09:07 PM #3
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Originally Posted by Brokenwings View Post
Hi Desi--Well, everyone responds a little differently to the blocks, but don't get discouraged!

In my case, I found the first block wore off pretty rapidly as well. The second block lasted longer, and the third block even LONGER. It was as if each block "boosted" the effects of subsequent blocks.

It was explained to me that the pain that came back (which really felt worse than it did originally) , was "re-bound pain". I found that I did not experience this phenomena as badly with the subseqquent blocks.

It is really very fortunate that you have a Doc who is ON TOP of things, Desi, particularly getting you scheduled so promptly for the series of three blocks.

I am curious--did your Doc discuss with you having Physical Therapy in conjuntion with your nerve blocks?

The reason I ask is that my Doc has always told me how very important it is do do my exercises after the blocks, and to take advantage of the pain reduction from the blocks. I have found that doing my exercises has really helped keep the swelling and stiffness down. However, my case might be diffferent from yours.

Oh-- re the hoarsness, etc--I found that this resolves totally within about 12 hours, and the neck pain from the injection should feel MUCH better by tomorrow. I use ice on my neck, which helps (no RSD THERE, thank goodness!)

In either event, I hope that the next nerve blocks really help get that RSD under control for you, Desi!!

Most Sincerely,

Brokenwings
Thanks for the "fast reply" broken wings!! yes, I had PT before the nerve blocks.. and I hurt so much after, that my surgeon that did the carpal tunnal said no more!! I had 6 of them. you guys really give me hope, and for that I thank you!! Love, Desi
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Old 05-02-2007, 05:49 PM #4
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Hi Desi,
RSD in my hands is the secondary areas for me. It first hit my feet. I am almost done with rounds of SGB's, a series of 6 on each side that was started in Jan. We had to reschedule a few times. I have 2 more to go on the left side. I have only had the aching neck I think twice during all that I have had this year so far. And I have only had a drooping eye-lid maybe 3 times total this year also. Have had the hoarseness when talkiing alot from them.

I had to go thru this series last year also. These SGB's seem to help keep the symptoms in check for me for quite a long time. I am going to try doing LSB's for my feet next. Seems like my whole year gets messed up with either SGB's or LSB's. Last year I ended up with major back repair surgery so no LSB's that year.

You hang in there ok??? Hoping they all work together to make it less painful for you.

DebbyV
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Old 05-02-2007, 06:54 PM #5
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Hi Debby!
Thanks for writing back!! girl, you have been through a lot!! gosh! I went to my Dr.(pain Dr. that did the block) this evening and he ordered me Gabapentin 100 mg. He wants me to take this at bedtime(2 pills)??? 2 weeks ago I was on Lyrica and OMG That did not agree with me at all!! I hope this pill is nothing like that!! I also have vicodin es and percocetts that make me sick, so, I don't take these unless absoutly necessary! Desi
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Old 05-02-2007, 08:14 PM #6
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Hey

Sorry it didn't work for longer!! I have had a couple of SGB's... but didn't make much difference for me - but hey.. Lots of people on here have found them useful though!

Just wanted to say I'm thinking of you and I hope the next lot help more!

Love

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Old 05-02-2007, 08:18 PM #7
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Thank you froggsy!! I hope the next block helps and then the last one on May 15th. my surgical Dr. said he may even send me to Cleveland clinic as a patient for a few days on I.V.'s! don't know if I wanna go there?? hmmmmmmmmmm?? Desi
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Old 05-02-2007, 08:27 PM #8
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Default Glad your okay Desi!

A question though...I'm being a real whimp about scheduling my block...[cervical as well] on top of it, it can only be done on a Monday...I work, and then have a class on Monday...[it's never easy is it]
A question for you, if you don't mind...how'd you feel afterwards? I've had facets injections and was in a lot of pain the next day. I was already told that I can't go to my night class...am trying to figure out whether or not I can work the next day. [I'm a teacher, and therefore have to plan ahead.] The doc's and nurses are all well and good, but I sure would like to know some first hand info.
Thanks!


Today I count the blessing that the sun is shining, and my kids are healthy!
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Old 05-02-2007, 08:58 PM #9
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Hey Desi,

What are they planning on giving you via IV? In the UK we have infusions of permidronate.

Love

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Old 05-02-2007, 08:59 PM #10
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Quote:
Originally Posted by countblessings View Post
A question though...I'm being a real whimp about scheduling my block...[cervical as well] on top of it, it can only be done on a Monday...I work, and then have a class on Monday...[it's never easy is it]
A question for you, if you don't mind...how'd you feel afterwards? I've had facets injections and was in a lot of pain the next day. I was already told that I can't go to my night class...am trying to figure out whether or not I can work the next day. [I'm a teacher, and therefore have to plan ahead.] The doc's and nurses are all well and good, but I sure would like to know some first hand info.
Thanks!


Today I count the blessing that the sun is shining, and my kids are healthy!
Hey there!! I was a huge whimp.. LOL I went, had it done and I was not allowed to drive after the block for 24 hrs. my Dr. gave me 1 mg. of xanax before the block yesterday. I felt good, but the pain came back in 5 hrs. Just ask your Dr. if you can go to your night class! everyone is different. my block had no effect on my impairment. the blocks are done so fast.. it's like?? your done in a second! I couldn't believe when my Dr. said;"ok, the block's done"! Good luck and let me know how go's!! Desi (P.S. if I thought the pain from the block was so bad, I wouldn't have the other two neck (ganglion blocks) I'm having May 8th. and May 15th.)
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