Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-07-2007, 11:35 AM #3
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi DiMarie,

I had to look up the Phernic nerve. It controls the diaphram and breathing.

My Immunologist I saw last week told me that it could mess with the breathing because of the diaphram being messed with.

When I got this put in I wasn't asked any questions about my medical issues but that was ok because some medical issues it wouldn't bother.

I do believe that since I have TOS that it might be a problem with the VNS.
I hadn't thought of any of this. My Dr. and I had been watching the VNS for a couple of years and I couldn't get into any trials but after losing Bill he pushed harder for me to have it. I believe he thought I wouldn't keep going on my own after losing him.

My biggest concern as I told him yesterday evening is that I have no control over turning it off or down. I do have a magnet that I can hold over it to shut it off but I couldn't wear it for 24 hours at a time or hold it that long for weeks. It just hit me yesterday to turn it back down. He was going out of town this week and I was so paniced that I was thinking if he couldn't get me in I was going to have him shut it off when he got back. As always he came through for me and he does want me to keep trying it longer.

I'm going to keep it hooked up for now. When I called the company they told me that there was a way he could turn one part up without the part that might be messing with my breathing so he's going to call them about that.

I have seen some difference with it. I have actually lost 7 lbs because of it. They said people loss weight with it in because it helps with the stress and anxiety and keeps a person from overeating. It has helped those two issues. As far as the depression, it's not there yet but as I said, I am not going to give up on it right now.

I have too many people around here watching me and what it does for me and I don't want to let them down. I want to give it the best chance I can for others that I would like see get it if they can.

Thanks for the support DiMarie. As always you have become one of my greatest friends since I have been on here. You are the best.

Ada
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