Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 07-07-2007, 08:52 PM #1
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,745
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,745
15 yr Member
Default

Oh , I hope they can get it adjusted for you soon. That will be great if they can make specific adjustments like they say.
__________________
Search the NeuroTalk forums -

.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-07-2007, 10:30 PM #2
NikonKid's Avatar
NikonKid NikonKid is offline
Junior Member
 
Join Date: Jan 2007
Location: nc
Posts: 49
15 yr Member
NikonKid NikonKid is offline
Junior Member
NikonKid's Avatar
 
Join Date: Jan 2007
Location: nc
Posts: 49
15 yr Member
Default

My husband has had a VNS for over 5 years for epilepsy. It was a miracle for him. No more seizures. I asked him about the breathing issue to see if it would help with what you're going through. For him when it goes off it affects his vocal cords(the wire runs right next to it) and he said that's where he feels the constriction.
It did take him awhile to get used to and even recently he taped a magnet to his chest to turn it off for a week because he had a bad cold and it was irritating going off with the cough he had. After having it off he had to ease back into having it back on again and get used to it going off all over again. It took a few days of turning it off and on again with the magnet but now back to normal.
We've been following the research since he got his into it's use for depression so I hope it can work out for you and help
Jeanne
NikonKid is offline   Reply With QuoteReply With Quote
Old 07-09-2007, 09:35 AM #3
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Jeanne,

One reason I didn't want to put the magnet up there is that if I kept it off any length of time, I was afraid of the same thing. I wouldn't have been able to let it turn back on.

Did it help his depression any? I hope so.

I believe that it is going to be a major thing for depression before long if it works for everyone. The man that helped me and my Dr. with mine said they had only seen one person it didn't help.

Thanks for the info.
Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 07-09-2007, 05:55 PM #4
NikonKid's Avatar
NikonKid NikonKid is offline
Junior Member
 
Join Date: Jan 2007
Location: nc
Posts: 49
15 yr Member
NikonKid NikonKid is offline
Junior Member
NikonKid's Avatar
 
Join Date: Jan 2007
Location: nc
Posts: 49
15 yr Member
Default

Ada
My husband has the VNS for seizures the depression he had was related to living with the seizures. Now he is seizure free and able to do so many things he couldn't before.
So as far as the depression goes I really can't say from experience but the research I've seen is extremely positive, so I hope they can find the right setting for you
Jeanne
NikonKid is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Can I cry for a moment?! My RSD just turned full body! InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 44 06-09-2007 07:43 PM
A Scary Situation Turned Out Fine GregD Parkinson's Disease 13 05-14-2007 06:21 PM
Teen acne, ugh it was a ear pimple that turned infected Dmom3005 Children's Health 7 05-01-2007 06:16 PM
Scince My Last Thread turned into something else trix Thoracic Outlet Syndrome 10 11-03-2006 02:33 AM


All times are GMT -5. The time now is 02:29 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.