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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Co-Administrator
Community Support Team
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Oh , I hope they can get it adjusted for you soon. That will be great if they can make specific adjustments like they say.
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#2 | |||
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Junior Member
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My husband has had a VNS for over 5 years for epilepsy. It was a miracle for him. No more seizures. I asked him about the breathing issue to see if it would help with what you're going through. For him when it goes off it affects his vocal cords(the wire runs right next to it) and he said that's where he feels the constriction.
It did take him awhile to get used to and even recently he taped a magnet to his chest to turn it off for a week because he had a bad cold and it was irritating going off with the cough he had. After having it off he had to ease back into having it back on again and get used to it going off all over again. It took a few days of turning it off and on again with the magnet but now back to normal. We've been following the research since he got his into it's use for depression so I hope it can work out for you and help ![]() Jeanne |
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#3 | |||
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Magnate
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One reason I didn't want to put the magnet up there is that if I kept it off any length of time, I was afraid of the same thing. I wouldn't have been able to let it turn back on.
Did it help his depression any? I hope so. I believe that it is going to be a major thing for depression before long if it works for everyone. The man that helped me and my Dr. with mine said they had only seen one person it didn't help. Thanks for the info. Ada |
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#4 | |||
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Junior Member
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Ada
My husband has the VNS for seizures the depression he had was related to living with the seizures. Now he is seizure free and able to do so many things he couldn't before. So as far as the depression goes I really can't say from experience but the research I've seen is extremely positive, so I hope they can find the right setting for you ![]() Jeanne |
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