Thank you for sharing! Get well soon!

#1OnPrayerList

Wow I cannot imagine what you are feeling right now. I'm happy they gave you another option than going to a nursing home. I know you said you don't want home health to come the first day you are home but it may make it easier on you. They can make sure everything you need is ready and make sure you are comfortable.

I will keep you in my thoughts and prayers

CD,

I am so sorry you are going through this. I hope by some miracle you are soon spared and hopefully the results you get will not be as shocking as you think.

Right after I had my first CRPS symptoms I started having dysphasia attacks which resulted in vomiting. I don't think it is coincidental. I never had stomach or bowel issues until CRPS.

I am recuperating at home after brain surgery and am having a rough time due to a difficult intubation. Severe stomach burning, reflux, vomiting. I can't eat. Chocking so hard I wet myself. This is close to how I was after the colonoscopy and endoscopy I had last fall, but at least I have been spared the miserable hip pain this time, because my CRPS limb as coddled. It took me months of eating just mashed potatoes to recover. (Multiple people said this was the only diet that helped)

Right now I can only drink warm ginger ale. Water tastes disgusting. I craved chocolate ice cream, ate it and hurled. So I am going back on to my mashed red potato diet, with DG licorice, aloe Vera juice, honey water, yogurt and Chia seed gel. I do not want to be on PPIs for the rest of my life.

My electrolytes are messed up, too. I think this is another symptom of CRPS. If you can't get water into your cells how can you heal? In the hospital I was given two IV drips and for the first time in over a year my hands were plumped up, no finger and palm wrinkles. My face changed enough for the nurse to remark about it.

The reason I was given the IVs is because I tried to sit up in a chair and eat some Cheerios. Lol, my head fell into the bowl.

I am not trying to hijack your thread, by making this about me, it is simply that your post resonated.

Thank you all. They came in already and said no way was I getting out of the hospital right now I just want to go home and let what happens happen.

CDwall,

I am so sorry for what you're going through. We are going to have to keep a better eye on you because you are clearly having way too much fun.

I know you are more than ready to go home. No one likes being in the hospital and it is never the easiest place to get rest. I do think it's good they are keeping you for right now. Going home without knowing if you can handle anything at all in your stomach may set you up for more trouble and another admission. It's best to get that settled first.

Is there any kind of rehab they can look at instead of a nursing home? If you go home do you have support in place to help with things you need? Home health nursing makes a pretty brief visit. If they can order an aide it will be short term. I just want to be sure you are safe....

Know that we are all sending healing love and thoughts of comfort. I hope that you recover soon and are able to get back to your babies.

I will light a candle for you today. Many, many soft hugs...

Thanks all. Doc just came in. I'm continuing to go downhill. Potassium still dropping fast despite every effort. And other problems. Feeding tubes and TPN discussed but they still won't know until biopsies come back if I'm my gut is absorbing at all. It doesn't look like it. Also I'm immunosuppressed from autoimmune rheumatological drugs so infection is a real concern for feeding tubes, etc. They won't even discuss discharge date now. Really bummed. Thanks for your thoughts.

Thank you for the update. I am so sorry to hear all of this. Get some rest when you can.

Prayers and hugs

We just want you to know that we are here for you and that we care. Praying, cheering, hoping that you get well soon. Rest!

Hugs. Thanks for the update. Sorry that you aren't able to go home like you want...been there though not ever in the way you are dealing with it now. Just focus on getting better so you can get home as soon as possible. Keep us updated...you are in my thoughts.

Things worse. Potassium still way too low no matter what they do and now bleeding out from gut. I hope this turns around and they don;t have to take me back to surgery. Blood count way down from when I came in from the bleeding. Docs are on it and concerned. This is a GI ward. Looking for better news tomorrow.
Thank for your support. Pretty out of it right now.