Well here is a new one for me!!! At night now I deal with what I call night tremors. My entire body starts jerking uncontrollably First the left leg, than the right arm, than the chest, than the right leg, etc,. They are so severe and so uncomfortable I wake up in the mornings with my stomach in knots its like going through a entire Jane Fonda Workout in your sleep. I rest my case.

WHAT IS THIS!!!!!!!!!!!!!!!!!!????????????????

HELP!!!!!!!!!!!!!!!!!!!???????????

I could easily be a stand in for Linda Blair in the Exorcist!

Mark

Not a doctor...laffs. So I have no clue what the night tremors are but I do know that you are worth a damn! I think you are worth a million bucks!



dp

Hi

My doc told me that my meds were to high and to back off for a couple of days. I did and it solved the problem for me. Good Luck.

Pam

Hi Mark,

Called "myoclonic jerks". Can be caused by lots of things but you can have them as a "standalone". My late partner (a doctor) had them, boy do they kick the other person out of bed and I'm not talking twitches, here.

It's most likely to be side-effect of the gabapentin-type drugs - neurontin, topomax, lyrica, some new ones I forget. All epilepsy medication, so might mean you need to ease off.

There's stuff on the net about it, but don't get too worried by what you read - many people develop them anyway, after a certain age, for no good reason and, other than morning stiffness, to no ill effect. Tiring and wearing, though and puts a crimp in your social life if you're single
all the best.

Hi Artist!

What are you doing in Hong Kong? Are you are native? Pictures I have seen look facinating!!

Pam

Hi Dodrill,
No, not native, originally a Brit, Ilived here as a young child then came back when I was about 30 - that was 25 years ago! My profile has my website URL, which tells you a bit, but I do all kinds of things to do with "visual art". Doing designs for hotel wall sculpture at the moment. Thanks for asking! Having a few problems right now coz the RSD's in my left hand, which can't draw for toffee (so that's a blessing) - but something's started happening to my right hand...dunno what yet.

What about you? Can you work?
Take care,
all the best.

Hi Mark,
About 4 yrs ago, both before and after I had had 2-3 blocks, my arm had tremors or should I say, jerking so bad that if you stood in front of me you took a chance on being hit in the face !!

My arm would be up against my body by my waist and it would jerk out far from my body & upwards. It went away after a few more blocks, but I have jerks in all 4 extremities now, however not as severe as you describe. It happens more as I am relaxing,
when I'm having a lot of pain or too much activity. I'll jerk or have tremors or both.
Here is one article I found describing this: Wh

http://www.rsdalert.co.uk/FAQ/isshakingasymptom.htm

"Yes, tremor (shaking) is among the symptoms identified in studies on RSD/CRPS. No two cases of this condition are exactly alike, and some people see very few of the so-called "characteristic" symptoms, while others get the whole book! Tremors may be aggravated when the patient is over-stressed or tired because the sympathetic nervous system reacts to these conditions...." go to the site to read more.

The association of postural tremor with reflex sympathetic dystrophy (RSD) has been reported....and my research shows it could also be related to your neck injury when you were in the cab accident.

Also dr hooshmnds puzzle says it is common.
www.rsdrx.com/rsdpuz4.0/puz_128.htm

Hey! He's not always wrong is he ??

Hope

I had one last night accompanied by serious hallucinations. Having done LSD, that is the only thing I can compare it to, but being awake and asleep at the same time is an insane feeling. I think mine is caused by stress.

Hi Mark, I'm sorry you have those jerks. They seem to come when we are asleep or relaxed watching TV. RSD is a disoder of the autonomic nervous system. They means we have no control over the involuntary muscles, circulation, thus burning feet and hands or the opposite cold to the bone temp. High blook pressure controlled by the sympathetic nervous system and low blood pressure by the para sympathetic nervous system. I would be sound asleep and the full body jerk was so violent, my head would fly right off the pillow. I've had RSD for 12 years now-full body followed surgery. The only think that control the myclonic jerks is an anti-seizure med. My neurologist put me on neurotin and I gradually had to go to 3200 mg. for them to stop. They make you very tired and gaining weight is a lovely sympton. Lyrica is in the same family of drugs, and after it was out for over a year, I switched over. I like it better, for the same affect and for me, it works better on the nerve pain. It's advertised for fibromyalgia too, which I have. Some like it, and others don't. I warm bath with epson salts is relaxing before bed. I take an antii-anxiety med, Lorazepam and really helps keep my nervous system more in a calmed state/ Hope the best for you, and hope this helps. Loretta

Hi Mike,

Sorry that you have the bad jerks also - I know how scary and painful they can be . I also have the really bad jerks, my PM Doctor and Neurologist diagnosed me with Myoclonus about 2 months ago now. The spasms are worse on a night but I get them during the day also.

This is a video of the spasms in my leg - the spasms started in April 2008 after an ingrown toenail removal on my RSD leg: http://uk.youtube.com/watch?v=xIXakErNBpE

I wish I could give you some advice on what could help, but so far I haven't found anything that helps. I have tried numerous muscle relaxants including Baclofen, Propranolol, Diazepam, Kenadrin etc.

I really hope you can get some relief real soon - you are in my thoughts

Alison