Hello,

I hope someone could help me.
I had traffic accident on Ibiza Spain 8 month ago where I have injured my knee.

Nothing was broken, just my patellar ligament partialy torn.
I was in a gips for a month.
I was seeing three ortopedic surgeons here in Germany where I live.

My knee was not getting better. My range od motion very limited and I developed scarring on ligament wich is preventig me from bending my leg.
I was frustrated with my doc and gone to se one in Croatia 3 weeks ago.

He diagnozed me with CRPS immidiately.

My ortopedic surgeon finaly did Rtg and confirmed as well as I have bone deminaralization.
I am reffered to Universitätsklinik Tübingen here in Germany to clear if I have or have not CRPS.

My simptoms:

Hair on the place if the initian wound, my toe nail looking weird, burning sensation in my leg, temperature difference between my both knees, my left knee is often ice cold.
And feew weeks ago I started to sweat terrible during the night, my shirt get completey wet.

Four days ago I started to have pain im my back, more like cramps but very light - I would say 2-3.

But what I don't have ( thank to God for that) is that constant terrible pain everybody is talking about.
That is one of my biggest fears. Will I develop that as well?
I am so devasteted and terrified, I haven't stoped crying since days, any very very afraid.

I ll be 35 in June and I don't have children yet.
That is now one of my biggest fears. Does this means I ll never have a baby?

Please, I would really apprecite advice or your oppinion on ig this is or notCRPS?

Has annyone treated it with low dose nalextrone? Any success?

Thank you all in advance!

P.S Sorry for my English, I am not a native speaker and come from Germany.

Sorry to welcome you to this group-CRPS is a nightmare.

Low Dose Naltrexone is a miracle. I believe I would be in a wheelchair today if I had not taken it. Within a short time I went from being unable to walk, to walking with crutches and then using a cane. My pain level dropped. My situation was different than others here, doctors were not prescribing me any pain relief. I had also been diagnosed with an incidental brain aneurysm which required surgery. Frankly, I was motivated to try anything.

Based on the Pradeep Chopra (a CRPS expert)You Tube videos I decided LDN was the medication I would try, because of his success with it in his practice. It was the best decision I ever made.

Aqua Therapy is also beneficial, it somehow magnifies the effect of LDN. Once I got in the water after using LDN I improved dramatically.

Sorry to hear what you are going through. I've been having a rough time lately and haven't been able to post much the past few days but just wanted to address your question about children.

Having CRPS absolutely doesn not mean you can't have children. It's obviously a very personal decision and some people choose not to but it's still possible. My RSD started in 2009...spread almost full body in 2011...and in November of 2014 I gave birth to a beautiful baby girl. She makes my life harder...but makes it worth living. Seriously...best thing in my life and there is always joy. No...I won't be playing softball with her when she's older or chasing her around the yard...but there are plenty of things we can do together. It's not a decision to make lightly of course...there will be rough days...but it is not impossible.

So please focus on getting yourself better and taking care of you and don't let that be a worry now.

Ajivliscat, Hello and Welcome to Neurotalk.

Your English is excellent!

I am so sorry for your injury and pain. You have found a great place for sharing and support here. We all know how scary it is getting this diagnosis but you are not alone. We are here for you.

There is hope, do not let go of it even when you are discouraged. The good news is that 80% of people with CRPS improve over time according to a highly regarded researcher and specialist from Cleveland Clinic. I believe you will have access to good treatment there in Germany. Two big researchers, Dr. F Blaes and Dr. A Goebel are there and you have access to things like ketamine, neridronate and LDN. It can take some time to find out what works best for YOU.

Of course we cannot say if you have CRPS or not but what you describe does sound a lot like it. I never had constant pain either and because of that it took longer for me to get diagnosed. Even pain doctors got confused because my color change and stinging/burning pain would go away when I elevated my leg. CRPS is a spectrum and has a variety of presentations. I would take the fact that your pain is not constant as possibly giving you a better outcome. Managing the pain is important for holding off potential brain changes in pain interpretation. So not having it all the time is really good.

Improving your strength and flexibility are very important but you must be careful and approach rehab gently. You want to keep using your leg but without causing your pain to be worse. You want to quiet down your pain and inflammation. You will make improvements, they just often come slowly. So you need to be stubborn about your recovery and just keep working at it little by little.

I agree with Bio on the swimming pool. It is a great place to do rehab. It will help many things and address some imbalances you may be getting from favoring your injured leg. Your back pain may be coming from an imbalance in the way you use your leg. A lot of us get sore from that. If I could easily get to Bad Kreuznach I would go there myself and get some physio and relax.

Please come let us know how you are doing. It does get easier and there is much in life to enjoy even with CRPS. It will help when your condition is managed. And as you can see, we even have a member who had a baby girl not too long ago.

Sending thoughts of healing and comfort,


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Guten Abend ajivlscat! Deine Engish ist sehr gut. Verzeih mir, meine Deutsch ist niecht sehr gut. Zu viel vergessen aber Ich wollte um Ihnen ein warmes Hallo.

In case anyone else is wondering what that says, - Good evening ajivlscat! Your English is very good. Forgive me, my German is not so good. Too much forgotten, but I wanted to give you a warm hello.

No two people are the same. CRPS can present itself differently at different times, as well as differently with different people. It is one of the reasons that make it so difficult to diagnose. As Littlepaw mentioned, you do have access to some great care in Germany. Some of which is either not available, or is not easily accessed here in the States. By treating it early, aggressively, and by keeping things moving, there is a very good chance of sending this into remission. Try to find a pool like BioBase mentioned. It can take the weight off making a little physical therapy easier and keep the swelling to a minimum. She did it along with LDN, but aqua therapy is good even without it.

Don't believe a lot of what you read on the internet. There are a lot of bad stories out there, that are out there because they are a little unusual and not what typically happens. They are out there because they are some of the more extreme cases.

As Catra mentioned. Having a baby with this is very possible. It is all a personal choice of being able to decide if you feel capable of of being able to take on the responsibility of a child. I don't think I could, but Catra feels that she could. It is all up to you if and when you think you are able to have a baby.

Having CRPS does not mean that your life needs to revolve around CRPS. It just means that you need to take a few extra precautions and be careful. There is plenty out there to still enjoy once it is under control.

I hope the rest of your evening goes well. I would recommend reading through some of the sticky threads at the top of the RSD/CRPS forum page if you would like to. I would normally recommend watching the Dr. Chopra video, but I have no idea how well it would translate. I have tried using CC translation on Youtube before and it can be hilarious at times.

We are a very friendly and welcoming group here and are here for you to support you along the way.

This is just an extra thanks to Purplefoot for an especially nice welcome.

You're amazing!

Welcome! I am sorry you have to be here but hope we can help. I agree with what has been already posted and I don't think I could say it any better.

One of the things I love most about this site is that even though we all have CRPS we are still very different. There are different genders, ages, locations, professions but we are all bonded by this condition.

Please don't hesitate to ask any questions. You may find these members to know more about CRPS than some doctors!