Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-04-2016, 02:17 AM #1
Always_Believe Always_Believe is offline
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Great tips! Thanks. I have a very tough time letting my leg rest in the seated position. My feet can't rest on the floor for more than 2 minutes without me flaring up in a very pain filled way. Have you (Or anyone else on here) tried flying first class with CRPS? It seems there would be more leg room. Or is there a spot for a wheel chair to sit where my leg could be resting up off the floor?

*Imagine that, I used to love to fly! Silly CRPS. How dare it make my life more complicated?* (as he tosses a ping pong ball against the wall and catches it a few times)
First class definitely has more leg room (and a much more comfortable seat). I have only flown first with my son (emergency surgery out of state & the airline decided since I paid hella $ for the tickets, we deserved an upgrade)

There's really not room for a wheelchair (as a matter of fact, those have to be gate checked and the airlines have what they call aisle chairs to transport from the gate to the seat). Maybe cold get a few smaller pillows in a carry on and use those ??? Your best bet may be to fly at an odd time and try to select a seat with no one next to it at the time of booking...maybe you could be able to put your leg up on the seat next to you. I have the same problem, with having my leg down...I can barely stand being in the car but I'm able to get my leg out further in a car at least.


I would fly to the grocery store if it was available to me...I love flying.
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Old 03-04-2016, 02:20 AM #2
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First class definitely has more leg room (and a much more comfortable seat). I have only flown first with my son (emergency surgery out of state & the airline decided since I paid hella $ for the tickets, we deserved an upgrade)

There's really not room for a wheelchair (as a matter of fact, those have to be gate checked and the airlines have what they call aisle chairs to transport from the gate to the seat). Maybe cold get a few smaller pillows in a carry on and use those ??? Your best bet may be to fly at an odd time and try to select a seat with no one next to it at the time of booking...maybe you could be able to put your leg up on the seat next to you. I have the same problem, with having my leg down...I can barely stand being in the car but I'm able to get my leg out further in a car at least.


I would fly to the grocery store if it was available to me...I love flying.

There are always piggy back rides to the grocery store.
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Old 03-04-2016, 02:22 AM #3
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First class definitely has more leg room (and a much more comfortable seat). I have only flown first with my son (emergency surgery out of state & the airline decided since I paid hella $ for the tickets, we deserved an upgrade)

There's really not room for a wheelchair (as a matter of fact, those have to be gate checked and the airlines have what they call aisle chairs to transport from the gate to the seat). Maybe cold get a few smaller pillows in a carry on and use those ??? Your best bet may be to fly at an odd time and try to select a seat with no one next to it at the time of booking...maybe you could be able to put your leg up on the seat next to you. I have the same problem, with having my leg down...I can barely stand being in the car but I'm able to get my leg out further in a car at least.


I would fly to the grocery store if it was available to me...I love flying.
Bummer, 4 hours with my foot down would really really be tough! How long was your longest flight (meant for Always believe and others too) with your leg down in the OWIE I want my Mommy position?
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Old 03-04-2016, 02:38 AM #4
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Bummer, 4 hours with my foot down would really really be tough! How long was your longest flight (meant for Always believe and others too) with your leg down in the OWIE I want my Mommy position?
3 hours. I'm seriously thinking travel by train next big trip. Amtrak gives discounts to disabled and companion. The roomette on a train would probably be more comfortable but a longer trip.
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Old 03-04-2016, 02:51 AM #5
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3 hours. I'm seriously thinking travel by train next big trip. Amtrak gives discounts to disabled and companion. The roomette on a train would probably be more comfortable but a longer trip.
WOW! What a great idea! Do you charge for those? I'm going to have to take a look at Amtrak. I wonder how long that would take me!!!!
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Old 03-04-2016, 02:53 AM #6
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WOW! What a great idea! Do you charge for those? I'm going to have to take a look at Amtrak. I wonder how long that would take me!!!!
My normal thinks are pretty cheap. Serious thinks cost a bit more but I frequently run special pricing...if I really need something and don't have the jingle...

Where are you headed? Coming to cook with me???
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Old 03-04-2016, 03:32 AM #7
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My normal thinks are pretty cheap. Serious thinks cost a bit more but I frequently run special pricing...if I really need something and don't have the jingle...

Where are you headed? Coming to cook with me???
Sure! Do you live in Mesa?
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Old 03-04-2016, 10:45 PM #8
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Sure! Do you live in Mesa?
Well....seriously considering another move because I have been so much of a burden to my kids and my parents are too old to help me, so I'm looking into locations where weather may not be as much of an issue that I may have more ability to afford long term

(and that sentence just ran on and on and on and...)
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