Hello,

I was curious if anyone else out there is greatly affected by the weather(rain, snow, humidity, excessive heat or cold changes) or when the temperature changes like a roller coaster, or when the seasons change and transition? I live on the east coast and with how unpredictable the weather is, as well as so up and down in temperature changes it leaves me in ridiculous amounts of excruciating pain, constant swelling, my body temperature is ice cold one minute and sweating bullets the next and even more heightened sensitivity. Not to mention it completely aggrivates the RSD which then ignites the symptoms further. I've been having major bouts of nausea, which I know is directly from the pain, but I'm noticing that its taking longer and longer to pass. Is anyone else experiencing this or anything similar? Is it just that the RSD is confused with the changes so it just misfires and goes into mass overdrive or panic? Sorry I try my best to envision certain things to try and understand this disease better and how it operates. So my Doctor and I usually compare the RSD to things that I can relate to, to explain it better in laymans terms then tons of medical words that I can't remember or pronounce.
Thank you all for taking the time to read this. Any feedback would be very helpful and much appreciated.

I am like a human barometer. Any weather change, even slight, registers in someway. I get so tired I can barely walk. I have been going through the freezing and sweating episodes since I stopped taking LDN, which is upsetting, because I don't have the energy to bathe and change my clothing everyday. I live in layers, so I am constantly putting on and taking off clothing. And I live with a heating pad and electric throw plugged in 24/7. My h brings me ice packs during a sweat attack to cool my head down, so I don't end up with a massive migraine.

My stomach is always upset, too. I used to think LDN contributed to this, but now I know for certain LDN has nothing to do with it. I lived on mashed red potatoes for several months, because this was the only food that calmed my stomach.

My newest color change is bizarre. My CRPS foot turns white, while my leg from my knee to ankle turns bright red. There is a distinct demarcation line at the ankle.

I could not stand in the shower for more than a minute yesterday, so I sat down on the floor, but couldn't get up. My h came to rescue me. My feet throbbed and CRPS foot cramped and ached all night.

Have you tried LDN?

Oh Friend,

It pains me to hear what you have said, because I myself have been there so many times. Sounds like you have a great Hubby. I am so thankful for my wife. Seriously I don't know what I would do without her.I use a moist heating pad which seems to be better than the regular ones. But like you said I'll have these awful fits of hot and cold. However my right foot all the way up to my hip is always ice cold, where my left foot to hip runs burning hot and cold. I definitely have some major circulation issues and concerns on my right side that I need to be seen by a Vascular Surgeon. I haven't walked in 4 years, am completely wheelchair dependent as well as dependent upon others. So I completely understand not being able to bathe everyday or change clothes. It's beyond frustrating and a huge feeling of loss-of your independence or dare I say "normality." My hypersensitivity is off the charts, so I can't wear socks, have a blanket or sheet on my feet, even the slightest bit of wind or the pressure of the shower feels like broken glass. I try to stay away from ice, since its a huge trigger for me, but maybe a wet wash cloth on the back of my neck would help with my temperature issues and nausea. I actually drink about 2-3 cups of Peppermint Tea a day. And let me tell you it works wonders for the nausea and digestive system. I buy it in its natural leaf crushed form as well as grow it at my home to make big pitchers for the warmer months. I have definitely experienced those color changes, but now both my feet and ankles are so black, blue, red and purple from my most recent surgery(2nd of 4-6) that Its a mixture from the surgery and RSD.
I'll be honest with you, I've been experiencing major effects from my limbic system being so greatly affected over the last year, plus some change(speech, short term memory, cognitive and motor skills) that I either don't remember what LDN stands for or I just simply don't know. So if you wouldn't mine explaining it, I would really appreciate it.
I'm so glad that I am not alone with this. It's so hard to tell with this disease sometimes. Thank you for your response.

Low-dose naltrexone (LDN)
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3661907/

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I am an East coaster as well. This AM, it was 45 degrees and I was chilly, it is now 52 and I feel like I just ran a marathon!!! Except my hand feels like Alaska. It's so hard to regulate this.

I am an east coast northern....Maine. I know it's gonna storm and weather changes are very scary with crps. By the way yes we are due snow sun into min hahaha the mud is almost gone in driveway. Oh well.im usually cold and tell ppl my arm is freezing they don't believe me unless it's turning colors. Til I touch them hahahah. I like 75 no wind and no humidity whose with me? Missouri n Kansas are good for me, can be 90 but humidity at 40 or lower so ya it works good