Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-17-2016, 05:33 PM #8
carolf carolf is offline
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Join Date: Apr 2015
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carolf carolf is offline
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Quote:
Originally Posted by Lauraw1967 View Post
Hi, Everyone. I'm new here. I have CRPS in both feet that developed after a bunionectomy in my right foot in June 2015. I was diagnosed early and started on meds and aggressive use of my feet. My feet still turn colors and have the burn on a regular basis but nothing debilitating. I'm still able to run and carry on with my life for the most part with some modifications. I guess I'm "highly functioning " CRPS. However, I do have flares that are miserable. I'm trying to manage this without opioids. I'm on Lyrica and Imipramine daily. I have lidocaine patches that I use at night so the pain doesn't wake me up. My feet actually feel better when I'm up and around.....maybe distraction, but I can't be up 24/7. What medications that aren't opioids or methods do you use to manage flares? Thank you in advance for your advice.
It sounds as if you are functioning similar to me. I have to ask what shoes you wear. Even when I'm not experiencing a flare I still have pain, extreme sensitivity and a bit of swelling. I've been wearing the same pair of leather boots and sneakers for over a year. The bunion on my good foot is rebelling. However, whenever I try a new pair of shoes (or even socks) that feel OK, the tingling and burning gets worse the longer I wear them - sometimes only last minutes. I have many "new" shoes in my closet I've been unable to wear. Any feedback would be appreciated. Thanks!
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