Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-21-2016, 08:32 PM #1
Neurochic Neurochic is offline
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Hi Becca

You said "I can't drive due to it being my right foot". I assume you have an automatic rather than a manual (stick shift) car. If you do then there's no reason you couldn't have hand controls fitted to your car - they allow you to drive without needing to use either of your feet to operate the pedals. You'd only need a set of basic push-pull hand controls because you don't have complex disabilities so they are cheap and easy to have installed. They don't affect the ability of other drivers to use the pedals as normal. You might at least have one less thing making your lives so difficult.

I have CRPS but I am unable to walk and have to use a wheelchair - not because of the pain but because of the severe dystonia and other movement disorders I have which make walking impossible for me. I've been using hand controls to drive for seven and a half years now and they really are easy to use. It would be worth at least looking into it because it really could make a massive difference to your life and that of your husband. If you improve so that you can drive normally again then you just take them out.
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Old 03-21-2016, 09:03 PM #2
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Quote:
Originally Posted by Neurochic View Post
Hi Becca

You said "I can't drive due to it being my right foot". I assume you have an automatic rather than a manual (stick shift) car. If you do then there's no reason you couldn't have hand controls fitted to your car - they allow you to drive without needing to use either of your feet to operate the pedals. You'd only need a set of basic push-pull hand controls because you don't have complex disabilities so they are cheap and easy to have installed. They don't affect the ability of other drivers to use the pedals as normal. You might at least have one less thing making your lives so difficult.

I have CRPS but I am unable to walk and have to use a wheelchair - not because of the pain but because of the severe dystonia and other movement disorders I have which make walking impossible for me. I've been using hand controls to drive for seven and a half years now and they really are easy to use. It would be worth at least looking into it because it really could make a massive difference to your life and that of your husband. If you improve so that you can drive normally again then you just take them out.
Always thought those were a lot more expensive than they are. Thank you Neurochic. I never would have looked into them if you didn't mention them here.
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Old 03-22-2016, 10:00 AM #3
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Yes to the hand controls, know all about them... nervous to try (I'll admit). But if I can get the brain fog and exhaustion from the gabapentin down then I might be more comfortable giving it a shot. When my husband used hand controls he got training on them first...
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Old 03-22-2016, 06:23 PM #4
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They truly are no big deal to use. I didn't bother getting any training when I got my first set and they were installed in a really powerful, fast car. It just takes a few days to get used to them and then you are on your way. It rapidly becomes second nature to drive that way.

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Standard push pull hand controls are really cheap in the grand scheme of things. They are cheap to buy and have installed and I've never had any of my three sets maintained, repaired or serviced. I have them installed in my new car, drive my car for three years then hand it back, get a new one and start all over again. None of my hand controls have ever needed anything done. I'm amazed that more people don't have them fitted or seem to be unaware that they exist.
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