Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-22-2016, 04:53 PM #1
NurseKris NurseKris is offline
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Default Ugh another flare!

Sorry I have been MIA lately I am battling one of the worse flares I have had in a while.

My PM doc is on vacation this week and the doctor covering is worthless. I try to be as understanding with doctors that don't know me or CRPS but his only solution was go to the ER. I asked if I decide to go could he call and give report before I get there and he said no that's not the kind of thing he does. Seriously! It take less than 5 minutes to call and give a report. I know because I have done it many times. I can't wait until my regular PM is back!

I am trying to figure out what caused this latest flare but I am having trouble finding a trigger. The only way I have been able to sleep is sitting up with nothing touching my legs. I am lucky that my pain does not increase when my feet are down and that I am short so my feet don't touch the ground.

It has been a rough couple of days. In addition to the horrible pain my spasms have decided they want in on the fun too! The swelling has increased as well and I'm sure having them dangling isn't helping matters.

I hope to catch up on the new threads and posts soon. Sorry for the long post but I just needed to vent to people who truly understand what it's like.
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Old 03-22-2016, 05:03 PM #2
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Vent away. We are here to listen.

Just wanted to send out some gentle hugs hoping that your flare will calm down without having to resort to the ER.
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Old 03-22-2016, 05:30 PM #3
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Hi Kris,
I am sorry to hear of your flare ups. They really suck!
I battle off and on with them myself. Mainly due to weather or forgetting to take my meds. You would think after nine years I wouldn't have difficulty with that.
I hope you find those triggers and will be able to do something about them.
Be well...
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Old 03-22-2016, 07:32 PM #4
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Sorry to hear about the flare up. Nailing down the triggers is often difficult because so many different things can cause a flare up...temps, noises, touches, over doing it, diet, stress, weather changes, small vibrations like the bass turned up too high on a car driving down the street...the list goes on and on...

I hope you feel better soon and things calm down quickly. Hugs.
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Old 03-23-2016, 06:03 PM #5
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Nursekris,

Nothing like having a less sympathetic doc to remind you how much you appreciate the one you have.

I wish I could figure out those triggers too. So often I am scratching my head over what (if anything) actually happened to set things off. Better not to torment yourself over it and focus on calming things down.

Do epsom salts help with your swelling any?

I hope you're feeling better today and get back to baseline soon. That was hardly a long vent by the way....
Sending hugs and healing love,
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Old 03-26-2016, 12:28 PM #6
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Thank you all so much! I cannot tell you all how much better this made me feel. It's nice to cry for good things instead of bad things!

I still have no idea what caused this flare but I think I can finally see the light at the end of the tunnel!

Littlepaw, I usually have a decrease in my swelling with epsom salts as long as the water is the right temperature. I don't know why but it didn't work this time.

I can't thank you all enough for the support you have given me!
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Old 03-26-2016, 01:34 PM #7
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Quote:
Originally Posted by NurseKris View Post
Thank you all so much! I cannot tell you all how much better this made me feel. It's nice to cry for good things instead of bad things!

I still have no idea what caused this flare but I think I can finally see the light at the end of the tunnel!

Littlepaw, I usually have a decrease in my swelling with epsom salts as long as the water is the right temperature. I don't know why but it didn't work this time.

I can't thank you all enough for the support you have given me!
Yay! I'm so glad that you are feeling better!!
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