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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-23-2016, 04:55 PM | #1 | |||
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It used to be that the Winter Months were my best months in terms of pain intensity. Then, when the humidity of the late spring and Summer months would come, my pain would elevate. So, I'd wait in eager expectation for the Winter to arrive, since it was some easier on me-painwise. I'm nervous this year for the coming of the warmer months with their high humidity around here. That's because my winter's struggles with CRPS this year have been without an established history. My pain has been way above what is normally my baseline for an extended period of time. And if my pain levels have been this high during the winter, I'm in fear of what the more wet and humid months will bring me. I currently don't have many good days, it seems. And there may be some factors for that. Yes, I've had a surgery in the midst of this Winter. Yes, I've fallen and jammed my foot into the floor. But those things haven't taken up the entire winter. And, there hasn't been any steady return to what used to be my baseline, which is a pain level of around 7 to 7.5 or 8, which at this point I would gladly welcome. As of late, my pain is skyrocketing. And yes, to be honest, it does make me fearful of the coming dawn of the much Hotter Wet and especially "Humid" Months. Man, I hate this CRPS Monster. It is relentless and takes advantage of anything that a human might normally enjoy, like the good ol Summer time!
#RantOver
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~ No Pain is Gain ~ -Spike- |
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03-23-2016, 06:10 PM | #2 | |||
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Spike,
I hear you on concerns over summer. The Texas heat set me off last year quicker than anything else. The best I can offer is to recommend doing any getting out early in the day, get in a pool if you can, avoid hot cars and hot food and drinks and crank the AC. You recently mentioned moving to Arizona. Have you spent a summer there? Hopefully the dry heat would be better and certainly it would get you out of Winters but you might try doing a July/august there before packing up and heading West.... Hope you get back to better days soon
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03-23-2016, 06:13 PM | #3 | |||
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What ever happened to you looking into a move to, was it Arizona? What about looking into air conditioning and a dehumidifier. I know it would limit the amount of time outside but at least you could have better control over your indoor temperature and humidity. It would give you someplace to escape the hot and humid mid afternoon.
I was not looking forward to winter when it came this year. Not knowing what to expect with the weather change. I am not sure what to think about summer. Last year I was a bit spoiled and had central air. Our new house does not have AC. I never did like the summer humidity much myself, but I have always enjoyed the warmth of the day. I guess it will be a new experience this year. I will see soon enough, but I hope it is better than this winter. I do hope that spring and summer are kind to you this year. I know you had a very rough winter.
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03-23-2016, 07:29 PM | #4 | |||
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I hope that you don't suffer this summer due to the same issues that I have. I'll be praying for you, big time!
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~ No Pain is Gain ~ -Spike- |
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03-23-2016, 10:52 PM | #5 | ||
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hi spike. I hope your pain levels start to lower as time goes on. i went through high steady rsd pain levels this past winter too even though we didn't get much snow it was still very cold, windy and damp out. i find that i get a lot of heat rashes and burn easier in the summer so i try to go out with a straw hat and sunglasses on with uv protection in it and sit under a big umbrella in the shade. i usually go out early morning while its still cool and there is no humidity yet. once the sun rises i am back in the house with the air conditioning on and i also use a fan at night if its really humid. my hands and feet start to swell up like balloons with the humidity and my rsd pain levels soar too. i hope that maybe a good fan may help a little at least too for you and i also hope your pain levels start to go down for you. mine have a little bit now that we are entering spring but i also dread the humid summer months. spring and fall are when my pain levels seem a little more manageable but not by much. sending soft hugs your way.
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03-23-2016, 11:21 PM | #6 | |||
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I would love to have a fan blowing. My only problem is that even a soft breeze ramps up my pain. CRPS is obnoxious. It is always interrupting everything. You know what, I'm going to try the early morning get up and go outside idea. I love that idea. The next beautiful spring day that we have... I'm going to be all over it. Thanks so much for the advice. I appreciate your help!
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03-24-2016, 03:35 PM | #7 | |||
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I really hope you are wrong about summer this year. I know you've had a rough winter and I hate the idea of things getting worse. Summer and I have a love hate relationship. The heat is good for me...but the air conditioning is my enemy. I end up wearing jeans and long pants and sweaters all season because the air conditioning flares me up bad. I have to constantly wear gloves because everything gets cold, especially door handles, and I need to protect myself from touching anything cold. I wouuld love to spend all my time outside during the months of summer...BUT...outdoors things are so unpredictable. There are breezes, there are bugs (whose bites can cause wicked flares), there are noises...bah...it's rough. I actually like that we do not have central air in my house because it means we can keep things warmer inside. With the baby of course we had to have the air on more than in the past last year so she wouldn't overheat. But while my own house is fairly easy to control...EVERY OTHER PLACE I go to is always SO cold during the summer. Warm spring and fall days are actually the best for me because there aren't any extremes either way.
At any rate...hoping you have a wonderful summer and that we have a mild summer. |
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