Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-06-2019, 01:00 PM #1
Hford80 Hford80 is offline
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Hford80 Hford80 is offline
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Default Will you be more specific?

Which did you do first, port or ketamine? How much time between the two? Also, do you remember th dose of ketamine? I typically get ketamine every 8 weeks and am now having to get IV fluids for autonomic neuropathy over the summer. Needle sticks are now causing flares of my previously unaffected hand. I see every member of my team this month so want to be informed and ready to prepare my case.

Thank you in advance!
Holly


Quote:
Originally Posted by SandyRI View Post
I have had a port for several years. The first one that was implanted was done on my right side, which is my affected side, and it caused such a horrible flare I needed it removed. I waited a whole, then had another put in on the left side. I coordinated the surgery with a ketamine infusion and did fairly well.

Good luck!
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Old 06-24-2019, 10:00 PM #2
gigicnm gigicnm is offline
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gigicnm gigicnm is offline
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Default

Holly,

You may get more responses if you post this question as a new thread.

If there are no issues accessing your veins (if it's pretty easy to put an IV in) and the problem is with pain and flaring from an IV stick you could ask your doctor for a prescription for EMLA cream. You apply the EMLA cream to wherever area they usually put an IV in an hour before you are scheduled to have the IV put in. The cream numbs the skin so you can't feel the IV going in.
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"Thanks for this!" says:
full_moons_of_hope (07-20-2019)
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