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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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I found that Neurotin helped with electrical pain, but I also found it gave me brain fog, which my doctor confirmed is a side effect.
After taking LDN for awhile I gradually weaned myself off Neurotin with no problems. I will never take it again. If you do not have luck getting a doctor to give you a script for LDN you have the option of ordering it from abroad. Google Dudley and LDN, for excellent information. |
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Junior Member
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I took all the research I could find to my pain clinic and said I want to try this. And they let me. It took 5 weeks to work and then.... it was incredible change. I could get up and feel better and less pain. I occasionally have to go off of it for things like oral surgery and removing a toenail because of the pain and needing opiates but I always go back.
Take in the research let them see you did your homework. They will then have to send the script to a compounding pharmacy and then you can pick up or they mail to you. Start at 1.5 and work up to 3.0 or 4.5. Chopra talks a lot about LDN in on of his lectures on Youtube. CRPS ![]() 34:00 mins he speaks about LDN. Very long lecture but very informative and has helped me tremendously advocate for myself. Goodluck. And always advocate for what you want! It is your body! ![]() |
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"Thanks for this!" says: | BioBased (06-05-2016), bluesfan (06-06-2016), RSD ME (06-06-2016), St George 2013 (06-08-2016), zinnia (06-05-2016) |
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Senior Member
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hi moms. i am sorry you've suffered with rsd for so long. i have never tried ldn so i can't help you with that but i have been on gapapentin/neurontin and pain meds since diagnosed with rsd five years ago. i have found that they have helped me manage my rsd pain a little better. i did have brain fog and dizziness due to the side effects from gabapentin during the first few weeks after taking it but the symptoms have lessend a little since then. i still have some brain fog and memory loss but find that it's worth it for me because it helps manage my constant rsd pain a little better. but everyone who has rsd reacts differently to the procedures out there for rsd. i hope that you find a dr that can help you find what works for you so that you start to feel better soon. take care.
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RSD ME . |
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