as a critical care nurse [before rsd] i can tell you ther was no day in school on rsd .... thus the problem!!! joan

I am so pleased to learn about this information re: diagnosis of RSD by the AMA. Dr. Kilpatrick can certainly be applauded for his efforts on behalf of all RSD patients. I think I may write him a letter thanking him for his support. Too bad there isn't some way would could all make a concerted effort to do things like this on our behalf. This way we could be using our energies in a positive way.
I'll have to check out his address on the internet. Do you all think this is a good idea? It just seems to me that somehow we could be proactive (those of us who up to the task as I know RSD can be challenging enought to deal with).
I appreciate reading research related info on this topic.
I do not have many of the symptoms in the *8 criteria. However, I have been diagnosed with RSD by several leading physicians in the country. I have severe mostly aching pain(sometimes severe aching becomes burning- actually sometimes my entire body is burning) and it may or may not have started in my arm. My history of full body pain is so bizzare - too complicated to explain but I am now disabled because of it. My nervous system and neuromuscular system is just not wired correctly. I have unusual reactions to normal treaments. That is probably the same for many with RSD or Fibro. I have both.
Doctors need to read more about RSD and I guess we need to help them and support docs especially people like Dr. Fitzpatrick.
Sydney

Hi Sydney,

What TREATMENTS has Dr. Fitzpatrick done for you? Since you do not have all the SX that is a wonderful thing. I for one, would be very thankful if you would share that with us. I have never heard what treatments he does. Much Love, Roz

Sorry but I was only responding to the article about him which I believe it was Broken Wings posted. He seems to be an advocate for RSD and changing the magical # of 8 criteria to meet the diagnosis of RSD.( Did you happen to readd the article she posted?) I think that is great since I don't have the magical #8 but I surely have RSD.
I do know from seeing the video and other reading that he is trying to start his own in patient ketamine treatment like Dr. Schwartzman.
Sorry - but I have found nothing that has helped - been on over 40 meds and still am in constant pain. Even my face and ears are burning today. That is usually for a limited period of time but has been going on forever today.
Sydney

Good on you Broken wings, as this is a reliable resorce of information.

Fact is.. a new MRI is coming out that proves an area of the brain to prove severe pain. Not soon enough, I say. Will take a couple more years for Canada though but is going to come there too.

My believe is.. you can only claim disbelieve for so long until technology catches up and proves the point

be well