Amber,

The first symptoms I had before the spreading to each new area was muscle spasms and cramping. Then the symptoms would spread to that area: color/ temp changes, PAIN, hair loss, nail changes, etc...

Also, I had the spreading to each new area a few weeks apart. So every few weeks the symptoms and PAIN would spread... ugh!!

It stinks having it full body... sounds like it could me going that route for you! I hope not though! It's so rough anyways, full body is just terrible, and agony. I am hoping that it's not going to go full body in you too...

You are in my thoughts and prayers!! I hope things start looking up soon!! ((hugs))

Hi Amber!
I had carpal tunnal surgery and got this demon RSD from it. Anyway, I did need the surgery as the band was so tight in my wrist (Ulner nerve) Amber, are your wrists swollen? My PCD refered me to the surgeon (Orthopedic) and he did this surgery Jan.9th. and I wish to goodness I never had the surgery, as this RSD has spread to my shoulder. Are your legs swollen? as for wringing out your hair in the shower I too know how much this hurts. The spine and wrist specialist said I have "Frozen shoulder?? hm... my pain Dr. said it's caused by the RSD spread. Also, I can't raise my right arm at all.. hurts so bad!! If I were you, I would go back to your PMD as he/she can tell you if it spread. wishing you the best Amber. hang on in there sweetie!! Love and Love, Desi

When you mentioned joint pains - It made me wonder about rheumatoid arthritis?? I would for sure get an appt to have this checked out.

Hi.

I have had CRPS in my left leg since 2003. I developed arthritis in my right knee in 2005. Recently my hands, fingers and wrists have become very painful and during my doctor visit a couple of weeks ago he confirmed my suspicion that arthritis has likely attacked these joints now. Arthritis causes a lot of pain and swelling. I am considered young to have this disease and it is not part of my family's medical history. I have an xray appointment coming up. I don't know if there is a connection between these two illnesses, but there is no doubt that I am afflicted by arthritis. I too suffer from low back and hip pain.

I also have difficulty with raising my arms above my head. Showering is really hard and sometimes I have to wait for my hubby to help me because I just can't do it myself. I hate this. I was dx with myofascial pain syndrome (by the pain specialist) last year. Resting my arms and massage are the only things that have helped resolve some of the pain and mobility problems.

Take care,
Miss Irie