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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Quote:
![]() I have never heard of such a cream/compound. Hmm, interesting! I have heard of full DMSO cream, but that you can't leave on your leg and have to remove within a certain amount of time, or else it burns the leg.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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I firmly believe casting caused my RSD. Mine started in 2006 after a bad fall down the stairs. I went to the urgent care the following day because my foot looked broken. They didn't find anything on Xray but assumed a break because of how it looked and did an aircast. The RSD set in 3 weeks later. I had it manageable, which isn't saying a lot, but I could walk a year later with much pain.
The pain still seemed to be both RSD and bone so they did an MRI and bone scan and found that there were indeed 5 fractures in my 3rd and 4th metatarsals - great, I thought it was the 1st metatarsal that was broken. In any case, we cast it in a plaster cast because after a year they didn't know how else to heal it. It took a week and the RSD was flared worse than ever and I wouldn't walk for months. The only thing that allowed me to walk again was pushing through insane pain. The RSD in the cast caused my leg to swell around the cast and I had to have the cast removed immediately. When they cut the cast off, they also burned or cut my skin and that was the worst pain I have ever felt to have a cast saw burn my skin with RSD. I worked for years to be able to walk and be active. Now if I'm down for any reason - if I have a cold or if I am recovering from something or if I don't walk a few miles in a day (granted still in pain) the RSD flares. The immobility seems to be a major trigger and a cast is straight out for me. Since they are talking about removable casts for you - with a strict physical therapy plan I could see it being okay, but you probably need to be able to move and work on things. For me now, I still have the broken bones in my foot and I broke another bone in the other foot a few years back. Broken bone pain isn't as bad as RSD so I know which one I take. Good luck in whatever you end up doing -- but please ask about doing PT or any exercises if you opt for the cast!
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Age 32 - RSD/CRPS Dx 11/2006 with Severe Small Nerve Fiber Neuropathy and various recurrent issues and autoimmune disease. |
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"Thanks for this!" says: | BioBased (08-17-2016) |
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#3 | ||
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Junior Member
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Hi everyone thank you for the replies, sorry I have been late to respond we have been having internet issues and I haven't been leaving the house either.
Yes my PT will want me doing exercises everyday and that will involve taking the casts off for everyone who asked about that, I won't just be sat around in it all day. So after seeing the head of the therapy department it looks like I am going to have to have my arm splinted as the skin is breaking down pretty rapidly in my palms and fingers, Im getting very sore and dry skin between my fingers where I cannot properly dry my hand. She wants this done under a general anaesthetic as my hand is completely fixed in place but they won't do this until I am having something else done which requires an anaesthetic ![]() |
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