Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-16-2007, 09:33 AM #1
InHisHands InHisHands is offline
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Hello Alison

Here are a few sites for you. I hope they help!

http://www.angelfire.com/wi/rsdhopeteens/personal.html

http://www.rsdescape.com/RSD%20In%20Children.htm

http://www.rsdescape.com/

http://health.groups.yahoo.com/group/rsdhopeteens/ (search on yahoogroups.com for more yahoo RSD teen groups)

http://fightingagainstrsd.tripod.com/

These aren't forums, they are just sites for children/ teens with RSD. You can find the email groups at yahoogroups.com though.

I am 17, have full body RSD and I know what you're going through ((hugs)) (who Ada mentioned above )

It is really hard going through this when you're young... it stinks! But hang in there. You already have my email address if you need me (hugs).

Last edited by InHisHands; 07-16-2007 at 09:53 AM. Reason: forgot to add something
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Old 07-16-2007, 11:25 AM #2
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Thanks for posting my site, Monster!!!

Hi Kay 159,

The RSDHope Teens yahoo group is at http://health.groups.yahoo.com/group/rsdhopeteens/ ...I've run it for a number of years (maybe as much as eight or nine years now, come to think of it). If you want to join, let me know...either go to the site at http://www.angelfire.com/wi/rsdhopeteens and email me from there, or send me a PM here with your email address and I'll send you an invitation. If you sign up by yourself through the yahoogroups site, make sure you include a message that I've been in contact with you...or at least your age and that you have RSD.

I'm 24 now, but I've had RSD since I was 12, so I've pretty much gone through life with this. I certainly hope you don't have to!

-Betsy
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Old 07-16-2007, 07:19 PM #3
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SKIPS!!!!

xxx
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