Desi,

With adults the safest dose is 3600 mg- 3800mg as far as I know, from several different doctors. I am on 3300 mg, and my neurologist is considering increasing it from there. I am 17 though, and an adults size and weight.

With a 12 year old, I believe, from what I have been told from a pediatric doctor, she would safely use 1800 mg. So, I think that there is still room to move, though you do have to take into consideration height and weight.

HTH!

Hey Alison,

Welcome!!

I just wanted to say that LOTS of people that are younger get better from RSD and go into remission pretty quickly! I have had RSD since I was 16 and I know alot of people who are younger who have gone into remission and recovered from RSD - so keep cheerful (if you can!) there is hope! If you want a message board which has a larger amount of younger people (these guys are great! but sometimes you might have concerns which are better dealt with by people more your age) then... http://shsskip.swan.ac.uk/
and it has a yahoo group.

I really hope that you get better soon and that you get things sorted. I hope the breathing gets better - do you think it is in relation to the pain?

Sending you love and hugs and hope

Frogga xxxxxx

Good luck.

Ask your mom and doctor about a beir block. This is a procedure where they inject a drug into the limb after stopping the blood flow. It can be effective if done early and is the normal second step.

Time is of the essence since the disease becomes resistant to treatment after a couple years.