Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-11-2016, 04:28 PM #1
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catra121 catra121 is offline
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default DRG Stimulation

Having a pretty rough day today. Started out with a doctor's appointment and then came home to my dog (who I've had 18 years) unable to walk and in pain...so we had to call the vet and will be saying our final goodbyes to her tomorrow...so hard.

But I'm sort of reeling from what the doctor said at my appointment.

First...the results from the skin punch biopsy show that in addition to me having RSD...I also have small fiber neuropathy. He believes this was either cause by my fall off the ladder or exacerbated by my fall off the ladder. I have to follow up with a neurologist to determine if there is another cause and what to do for treatment.

Second...the doctor said that after all the tests and failure of medications to give me sufficient relief...he wants me to get a DRG stimulation unit. The success rates he quoted for this new stimulation unit were impressive I have to admit. After 10 months of barely functioning due to this increased pain since the fall off the ladder...I am seriously considering this. He wants me to get two. First one would be for my lower extremities (left leg) and then early next year a second one to treat the upper body (which is not yet FDA approved but he's expecting it to be later this year or early next year).

What are your thoughts on this new DRG stimulation? Be honest...I've always been pretty skeptical of SCS for RSD treatment based on what I've heard...but it sounds like the successs rate for this is higher and has better long term results (but they've only been doing them in England for 4 years so no results longer than that to look at).
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"Thanks for this!" says:
ger715 (08-23-2016), RSD ME (08-15-2016)
 

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