I too am a fan of LDN. My combination of Gabapentin, Lyrica, Celebrex and LDN is working fairly well. It's not perfect, but what is??

Have you tried weening off any of them? I found I only needed LDN when I was regularly going for PT in warm salt water, unfortunately since that was terminated by WC I have had multiple flares, which require me to take tramadol. I believe that short stints of drugs are vital to control the worse pain, but I fear that long term they negatively alter our bio-chemistry.

Because you take LDN you might be interested in the liver cleanse drink I make. It's delicious. Simply wash and chop a whole lemon into quarters or smaller. Add to a food processor,blender or vitamix, along with 2 tablespoons of olive oil and blend with four cups of filtered water. Drain through a sieve, into a glass jar. Store in the refrigerator. To drink: pour 4-6 oz into a glass, add some vanilla, stevia and ice cubes.

Thanks for posting your liver cleanse drink. After using lemon juice drinks after my ketamine treatments, my follow up blood tests finally started to come back normal. The lemon unfortunately started to aggravate my GERD so I switched to lots of broccoli and cauliflower which I read could aid in cleansing the liver. No problems after using them either.

I have stopped my LDN, due to unsurance issues, which I should have cleared up soon. I also switched to Wellbutrin from Lexapro. I am having a miserable time. Not sure if its the one or the other or both, but this bleeping bleeps!

I get mine on my own dime.Five months of 4.5mgs is 90 at Belmar in CO.

Hello,
I did not realize I have not returned to post my result for the LDN. I tried it for a few months but eventually stopped because It did not seem to make any difference on my pain. However, I have found soaking/swimming in the ocean helping with my PN and RSD pains tremendously. It is too bad I can't access to a salt water pool or warm ocean. I accidentally discovered this while I was vacationing in Hawaii. Try it if you can access to a salt pool or warm ocean.
Good luck and take care,
Numb

Numb,
It's unfortunate that you had no success with LDN, but may I ask if you switched compounders before you threw in the towel? I ask, because it is well documented by Dr. Bihari that patients often get no potency, low potency or slow release LDN. This is why he advocated DIY LDN. You cannot fully trust the compounded medications, they are not FDA approved.

Recently one CRPSer wrote on the LDN FB page that she had instant relief.

Others write it took a year. I am now grateful that no doctor would prescribe it for me originally, which forced me into DIY. What if I had gotten no potency LDN I might never have recovered? I am more leery than average, due to a previous compounding failure that cost me half my hearing in one ear.

I also wonder if some think they will lose their business if LDN proves to be too successful, so they purposefully compound less than effective LDN.

I wish all the LDN products that do not work could be checked for potency.

Posting to add this info: LDN may not work if you have candida, yeast.

This free-access review is a balanced summary of the potential risks and benefits of LDN treatment https://www.ncbi.nlm.nih.gov/pubmed/24526250.