[Desi]

A "HUGE WOW!!" This board is jumping today!! wow!! In the past few days, we have had some new folks on here, and I for one would like to each and everyone of you! Please do not hesitate to post, vent.. whatever?/ Anyway.. glad you all are here.. we are all like family to each other with support, links(me, don't know much about those, except on my smoking cessation board) It will be 3 "smoke free" years for me in sept. by the Grace of God and the fine friends on there as well! Love and mega hugs to all!! awwwwwwww.. lets just all give ya all a HUGE (group hug!! Love, Desi

[DreamPoet]

I, for one, appreciate the welcome and friendliness of the people on this board. I've already received so much help, and am making new friends. This board is a gift from God to those who need encouragement through this disease.

[1to talk]

I sorry I cant be positive anymore I do not want to make any enamies here I have nothing against you I wish you well! I see my glass as empty not full like you all! my life is gray and rainy Iam a zombie most times I live with nurse Hatchet who says Im a druggy yet wants me drugged up so she can control me i dont know what happens most times I live in a fog with all my meds! I see RSD as a monster who will KILL ME one piece at a time it wont let go of me! not only does it do it physically but mentally and it then goes on to destroy families! OH I live in hell I know other out there understand what frame Im in. Again I care for you all I do not hate you nor wish to say you are wrong but my mind set is this way...SORRY

[frogga]

Hey,

I am thankful to have found this board as well, it has been great to find a group of others who understand what it is like to live with this!! it helps so much having someone say "I understand" or "I know what you mean". Because, good as my friends are (and, in bizarre ways, my family is!), they can NEVER understand RSD!

Welcome all newbies, I will probaly get you all confused for the first couple of months -but ignore it! I hope you find the support you need.

1to talk - I know you can see nothing positive at the moment - which is why I am really asking you to seek some help with this from someone like a pain psychologist! Is there any way your pain mangement doctor will change your meds so you get less side effects? what are you on?

Love

Frogga xxxxxxx

[dawn3063]

Congradulations Desi on your 3 smoke free years....

That calls for a Happy, Happy Joy Dance

DreamPoet-Isn't that the truth. This board is truley a Gift from God for me it has brought me so many new friends, encouraged me when I was depressed, gave me hope when I felt there was none, brought me answers and made me laugh many times when we all needed that lift me up...

1to Talk-I am sorry that you are going thru such a difficult time with your RSD and your family. RSD is truley the most painful form of Chronic Pain that exists today per the McGill Pain Index and Family support is so important. Is it possible that you can get into see a councilor even one for pain management they can be of so much help. I see a pain management councilor as well as a psychologist. I was getting to the point where my depresson was getting out of control and I needed to find some help. It has helped me considerably to be able to sit down and talk with someone that doesn't judge me yet listens and gives me very resonable suggestions. Hang in there... We are here for you...

Many Gentle Hugs and Welcome to All Newbies...

Dawn

[lostmary]

I agree that this is the best board out there. I've met some wonderful people that I consider my friends. We are all so different, yet so much alike. we all suffer from rsd and family and friends that don't understand what we are going thru. We all have good days and bad days, and days where we don't even want to get up out of bed. I feel so luck that we have this group.
Mary

[JOAN_M]

i agree, i love coming to this board once a day, or at least every other day, to get support and just see through the internet world, a few friends who are living with rsd.
i have had my days, and weeks, and even months of horrible depression, so i understand 1to talk, but i came out the other end. ;et me tell you, you need to get better care. you need to talk seriously to your doctor to make sure you are not over medicated or taking the wrong medications, and you need to talk to a counselor or social worker about your family situation. many of us end up in an abusive relationship and feel we cannot get out of it but once you 'out' the abuser, things will get better. you need to take charge of your rsd care plan and not be a victim. make some calls today. ask here for help. i can only tell you, if you wait for someone to save you, it will probably never happen. we, each in our own way, have to be in charge of ourselves and demand the best care or it does not happen. joan

[sue k]

1totalk,
I for one feel just as you do most of the time.I am also called a druggie by family members. You need help from a thereapist. This disease is a monster and we all need help dealing with it. Sometimes I cry for hrs. Please hold on. We are here for you.

Love SUE K.

[Imahotep]

Originally Posted by 1to talk

I sorry I cant be positive anymore I do not want to make any enamies here I have nothing against you I wish you well! I see my glass as empty not full like you all! my life is gray and rainy Iam a zombie most times I live with nurse Hatchet who says Im a druggy yet wants me drugged up so she can control me i dont know what happens most times I live in a fog with all my meds! I see RSD as a monster who will KILL ME one piece at a time it wont let go of me! not only does it do it physically but mentally and it then goes on to destroy families! OH I live in hell I know other out there understand what frame Im in. Again I care for you all I do not hate you nor wish to say you are wrong but my mind set is this way...SORRY

One of the first things I learned about this disease was to not compare my pain or problems to anyone else. No matter how bad I had it, there were always those who had it far, far worse.

In my own case the doctors refused to diagnose me for years. Rather than lie around in a fog I suffered horribly while working!!! Yes, this thing is horrible, but there are so many who have it so much worse and rise above it.

We can too.

[JOAN_M]

you know 1totalk, i have been thinking of your statement quite a bit over the last 24 hours, and i want to say that i total agree, rsd is a monster. that is for sure, but monsters are able to be tamed, or trained or slayed if necessary .... i think you need to literally visualize this monster, and then decide how you want to deal with him. i have accepted my monster and some days he tries like heck to bite me, but i refuse to let him get my spirit, and sometimes i have to get tough with him. you know for years i LET him be in charge, and i was miserable, now, he like a barking dog .... but i do not let him bite. i wish you all the best in making your relationship with this part of you that you have to deal with. joan