FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
07-19-2007, 12:58 PM | #1 | ||
|
|||
Member
|
Hi Everyone.
Say, is there anyone out there that has tried ketamine treatments? Not sure if we've talked about this before or not. I'm told that I could possibly do a ketamine infusion treatment that would be a daily IV treatment for 3 weeks down at Mayo Clinic. I believe this will keep me from working - I'd need to take 3 weeks of short term disability. Is there anyone out there that has done this type of treatment? |
||
Reply With Quote |
07-19-2007, 05:37 PM | #2 | |||
|
||||
Member
|
Hey,
I haven't done this treatment - but GnP has. However I have been on daily oral ketamine for over a year and it has really helped my pain and has allowed me to go to uni so it's great YAYAYAYAY so I would really REALLY advise it! Love Frogga xxxxxx |
|||
Reply With Quote |
07-19-2007, 05:48 PM | #3 | ||
|
|||
Member
|
Hello,
I have had repeated Ketamine Infusions but never as an outpatient so I am sorry but I can't comment on the outcome. Hopefully someone who had done it this way will be able to advise. Tayla |
||
Reply With Quote |
07-20-2007, 08:06 AM | #4 | ||
|
|||
Member
|
there's so much discussion about IV Ketamine--would be good to hear more..
Frogga... more please about ORAL Ketamine... how prescribed, dosage, etc. I'd heard about this from mom whose daughter had horrendous pain following surgerys for Chiari --she said it was the only thing that helped ( her daughter also had intensive sedation in-hospital + narcotics, etc...) Good to hear Something helps this pain!!! |
||
Reply With Quote |
07-20-2007, 08:16 AM | #5 | ||
|
|||
Member
|
Hi.
Yes, Frogga, I would like to hear more about the oral ketamine. What are the side effects? thank you. |
||
Reply With Quote |
07-20-2007, 08:21 AM | #6 | ||
|
|||
Member
|
Sorry I have not had consecutive ketamine IV boosters .
I have only had one booster followed by an oral protocol. Dr.Schwartzman does offer a 10 day outpatient protocol IV boosters - 4 hrs @ 20 mg /hr for 10 days He did tell me that these are not as effective as the wide awake coma treatments as RSD is stubborn .The brain likes it's new rewired system and does not want to go back to its old way of functioning . As soon as the ketamine is out of our bodies the brain goes back to misfiring That is why it needs to be rewired around the clock. and it needs a lot and sometimes repeatedly and often. At least that is his theory.It does make sense. Ketamine is an Nmda antagonist- that is why it works so well If you trust your doctor and want to try this outpatient protocol why not? There are abstracts on the topic so why don't you google it to become more informed, I am sure any good amounts of ketamine will give you some relief and if you are lucky it will last awhile. What would be wrong with that? peace. GnP |
||
Reply With Quote |
07-20-2007, 12:34 PM | #7 | ||
|
|||
Member
|
Frogga and others who have tried ketamine.....
Just wondering how you are taking the ketamine. I tried both the nasal and tongue route and neither helped at all. What are you using? Just curious. Maybe there is a pill or something. After having a really bad neuropathic reaction in my mouth to a liquid med. I am scared to death to take anything on my tongue again. Thanks, Sydney |
||
Reply With Quote |
12-30-2008, 03:36 PM | #8 | ||
|
|||
Junior Member
|
Quote:
|
||
Reply With Quote |
12-30-2008, 06:01 PM | #9 | |||
|
||||
Member
|
Quote:
Lori Lee |
|||
Reply With Quote |
12-31-2008, 07:38 PM | #10 | |||
|
||||
Member
|
i just had an iv ketamine treatment on moday, it lasted like 5 hours i think, then time to wake up. because i was already taking ketamine for 2 years i got a double dose. usually the dr leverone would give approx 500 mg over the time frame, slowly increasing the flow. i started at 1000mg and he started the flow at full speed, getting booster of more every so often. i have to take 40 mg ketamine pills twice a day and an ativan pill at bedtime. i never fully went to sleep, which again was a first for him. i was able to talk but i was def not coherant. usually his patients are just asleep, but not in a coma, and are able to breath on their own. i was able to leave the surgery facility once i was able to get up and walk. i'm supposed to stay at home for 2 weeks, and not drive or really do much so i make sure i don't re-injure myself and prevent myself from having a relaspe and coming out of remission. i haven't had any pain for 2 days, and pretty much have just been really tired. i have dilaudid incase i do get any pain, but i haven't had to take any. hopefully after the two weeks i won't have to take any pain meds at all. all my symptoms have gone away. obviously my range of motion and strength aren't back and i'm thinking of going back to pt once i'm able to drive after the two weeks to get all that back. just keeping my fingers crossed i don't get it back. if i do then i can have another one if i feel i need it, he also has an option for doing it several days in a row, going home after each 5 hour infusion and just coming back each morning. its $2k a day, $1 k for the doc and the other for the facility. everyone was super nice. i would def recommend it to everyone. its not covered by health insurance, because it still is experimental, but i know my insurance- blue shield, but they are going to reimburst me. i just have to submit my receipts to them. i have dr leverone's number and email if anyone would like them to discuss things with him. i never had to go in for an evaluation, we did everything over the phone and email. the facility he uses is just south of ucla, and hopefully over the next few months he'll be able to do them in northern/central ca in salinas. i haven't had no pain for 5 years and i definately think that even if it doesn't stick that having it done is still worth the $2k. its amazing to not have any pain at all. i'll keep everyone posted for sure and will answer any questions.
happy new year everyone!!!
__________________
~*Andrea*~ |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Trying Lyrica and a Magnesium Infusion | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
I had my first IVIG infusion today.......... | Peripheral Neuropathy | |||
Alan's Infusion!! | Peripheral Neuropathy | |||
Ketamine Infusion - outpatient | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Question about Ketamine treatments | Reflex Sympathetic Dystrophy (RSD and CRPS) |