Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-27-2016, 03:00 PM #1
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Default Naltrexone prescribed!

Just to let you know I was able to get a prescription for LDN through one of my former doctors and it can be filled at my local CVS, because it is for the 50mg tablets. According to the pharmacist I spoke to at CVS this is getting to be a fairly common practice. Wow. (:

Edit: update, the prescription was sent not to CVS, but to the local compounding pharmacy, which screwed up my betahistine in the past, sigh. Since it is a compound it is not covered by insurance. The cost is $70 for a months supply, which to me is simply outrageous.

The cost per 50mg tab of naltrexone averages about $2.50. Taking 4.5mgs per day I would need approx. 3 tabs per month, at an approx cost of $7.50 per month.

Please share your thoughts. I am open to all suggestions. I hate to continue to get LDN online, but I may be financially forced into it, but at least now I have been prescribed it.

Last edited by BioBased; 10-27-2016 at 03:43 PM.
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Old 10-28-2016, 04:49 AM #2
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Quote:
Originally Posted by BioBased View Post
Just to let you know I was able to get a prescription for LDN through one of my former doctors and it can be filled at my local CVS, because it is for the 50mg tablets. According to the pharmacist I spoke to at CVS this is getting to be a fairly common practice. Wow. (:

Edit: update, the prescription was sent not to CVS, but to the local compounding pharmacy, which screwed up my betahistine in the past, sigh. Since it is a compound it is not covered by insurance. The cost is $70 for a months supply, which to me is simply outrageous.

The cost per 50mg tab of naltrexone averages about $2.50. Taking 4.5mgs per day I would need approx. 3 tabs per month, at an approx cost of $7.50 per month.

Please share your thoughts. I am open to all suggestions. I hate to continue to get LDN online, but I may be financially forced into it, but at least now I have been prescribed it.
I have no clue of what you can do about it. Different countries and all...

I once had a massive cost for my meds, Neurontin wasn't insured back then, and we are a government insured (everybody is insured) country and medication usually isn't that expensive. So... it was hard. But I still shelled out the money for it, because yeah... I need the medication. That's what it all comes down to.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 10-28-2016, 07:30 PM #3
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Quote:
Originally Posted by BioBased View Post
Just to let you know I was able to get a prescription for LDN through one of my former doctors and it can be filled at my local CVS, because it is for the 50mg tablets. According to the pharmacist I spoke to at CVS this is getting to be a fairly common practice. Wow. (:

Edit: update, the prescription was sent not to CVS, but to the local compounding pharmacy, which screwed up my betahistine in the past, sigh. Since it is a compound it is not covered by insurance. The cost is $70 for a months supply, which to me is simply outrageous.

The cost per 50mg tab of naltrexone averages about $2.50. Taking 4.5mgs per day I would need approx. 3 tabs per month, at an approx cost of $7.50 per month.

Please share your thoughts. I am open to all suggestions. I hate to continue to get LDN online, but I may be financially forced into it, but at least now I have been prescribed it.
If you really are interested in trying this medication, I would call around to different compounding pharmacies for pricing options, as they vary greatly. I tried LDN, unfortunately it did not work for me, but I only paid $35/month for it. I take oral ketamine, which I get compounded, and I use an out of town pharmacy, which was the cheapest and they ship it to me every month. I have been doing this for over a year and a half now and have had no problems. So call around and consider small town or out of town pharmacies, as they sometimes have the best rates (usually less than half). Good luck and I hope you get good results and good price!
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Old 10-28-2016, 08:04 PM #4
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Originally Posted by LovesTerriers View Post
If you really are interested in trying this medication, I would call around to different compounding pharmacies for pricing options, as they vary greatly. I tried LDN, unfortunately it did not work for me, but I only paid $35/month for it. I take oral ketamine, which I get compounded, and I use an out of town pharmacy, which was the cheapest and they ship it to me every month. I have been doing this for over a year and a half now and have had no problems. So call around and consider small town or out of town pharmacies, as they sometimes have the best rates (usually less than half). Good luck and I hope you get good results and good price!
Thank you LT, I have used LDN for quite awhile with great success. After some thought and your encouragement I will do some sleuthing to find the most affordable way I can obtain it. It infuriates me to pay for it out of pocket, when it is for a WC injury that cost me my job.
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Old 10-28-2016, 08:29 PM #5
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Bio,

I am pleased you were finally able to get a prescription for the LDN. I think it's worth pursuing different compounding options as LovesTerriers said. If you can get it affordably it would be nice to have it as an "official" medication on your record just in case it affects anything with any of your doctors. (even though it isn't controlled). Things can get persnickety sometimes with the various contracts on prescriptions.
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Old 10-29-2016, 08:20 AM #6
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As Lovesterriers suggested shop around for a better price. Compounding is more expensive, but some compounders are more patient friendly than others. Right now you have to see if it is the drug that will work for you. If it turns out it gives you the relief that you need, inquire about pricing for higher quantities i.e. 3 months instead of just one. Maybe that would be cheaper.

Good luck!

Shay
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Old 10-29-2016, 09:22 AM #7
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As Lovesterriers suggested shop around for a better price. Compounding is more expensive, but some compounders are more patient friendly than others. Right now you have to see if it is the drug that will work for you. If it turns out it gives you the relief that you need, inquire about pricing for higher quantities i.e. 3 months instead of just one. Maybe that would be cheaper.

Good luck!

Shay
Maybe it's country-specific, but why are prices in the US so vastly different one pharmacy to the next? It's odd, because we have government-fixed prices and no pharmacy deviates from that.

Here is our pharmacy database, where you can look-up medications and their prices (language = Dutch), by "BRANDNAME" or "generic name":
pharmacy database
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 10-30-2016, 09:30 PM #8
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Oh that's a HUGE bag of worms. Not only do we get vastly overcharged in the US for our prescription drugs (as compared to the rest of the world) but our insurance is all different for different people on different plans... and then larger pharmacies can afford to offer discounts so sometimes they are cheaper. But then on specialized stuff sometimes the smaller pharmacy may be better (they may pay closer attention to the work, etc.) and you may get better pricing to. Welcome to the free market in the USA. Its insane.
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Old 10-31-2016, 05:33 AM #9
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Oh that's a HUGE bag of worms. Not only do we get vastly overcharged in the US for our prescription drugs (as compared to the rest of the world) but our insurance is all different for different people on different plans... and then larger pharmacies can afford to offer discounts so sometimes they are cheaper. But then on specialized stuff sometimes the smaller pharmacy may be better (they may pay closer attention to the work, etc.) and you may get better pricing to. Welcome to the free market in the USA. Its insane.
Yeah, I thought so. Over here we sometimes talk about the rest of the world. We are overtaxed (up to 50%), for sure, but we do have general health insurance. It's kind of outweighing the pros and cons of both systems, isn't it. It's not like general health care comes cheap.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 11-01-2016, 03:15 PM #10
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Where do you get it online from?

Quote:
Originally Posted by BioBased View Post
Just to let you know I was able to get a prescription for LDN through one of my former doctors and it can be filled at my local CVS, because it is for the 50mg tablets. According to the pharmacist I spoke to at CVS this is getting to be a fairly common practice. Wow. (:

Edit: update, the prescription was sent not to CVS, but to the local compounding pharmacy, which screwed up my betahistine in the past, sigh. Since it is a compound it is not covered by insurance. The cost is $70 for a months supply, which to me is simply outrageous.

The cost per 50mg tab of naltrexone averages about $2.50. Taking 4.5mgs per day I would need approx. 3 tabs per month, at an approx cost of $7.50 per month.

Please share your thoughts. I am open to all suggestions. I hate to continue to get LDN online, but I may be financially forced into it, but at least now I have been prescribed it.
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