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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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Are there any grandparents on here with severe CRPS? I now have two of my kiddos married, and I can imagine that one of these days, one of them will announce they're expecting. Common next step, right?
![]() But I am really struggling with the idea of grandparenting with my severe CPRS. It started 5 years ago in the ball of my left foot, and 2 years ago spread to the ball of my right foot. It makes walking all but impossible, since I'm constantly balancing on my heels to shuffle. In fact, I just got hand controls installed in my vehicles. (Which I LOVE, btw!) The fact remains, CRPS has severely limited my ability to get around, plus my doc is pretty sure it has morphed into fibromyalgia since my entire body now hurts on a daily basis. My kids know to hug me gently since anything harder hurts. I can't be bumped or jostled without excruciating pain. I'm in a wheelchair for outings like the store or mall. CRPS Is a nasty bit of business, isn't it? My college degree was in Early Childhood Education, and I ran a preschool in my home for years after that. But being around children now is like Kryptonite. ![]() I would love to hear from those of you who do it! I expressed my concern to a couple of friends before, and they just said things like, "Just tell them to be gentle." HAH!!! What, are you KIDDING ME? That's like telling a dog not to eat the pork chop that just fell on the floor in front of them. ![]() What have you managed to make work? |
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"Thanks for this!" says: | Shay08 (11-05-2016) |
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