Hi all!

Man RSD has to be the worst thing on the planet. The pain is like the energizer bunny lol. The darn stuff has spread throughout my body now, and sometimes it is very difficult to even move let alone walk.

I have to force myself to get up in the morning, and once up can hardly get around. Sometimes the pain is so bad I forget to breath, im just sitting there all clenched up and holding my breath.

I had a friend recently send me an email. It really hit me hard because I knew that RSD has effected me, but didnt realize that others were noticing it so much. I posted it up on my forum, and would have posted it here, but I gotta get my feet up. They are so swollen they feel like a macy's day parade balloon. lol

Here is the link to my friends point of view on RSD.

http://www.freepowerboards.com/crps/crps-about66.html

Hi Allen, Sorry you're having such a tough time of it right now. Hope something....anything...comes along to lighten your load. I read your friends letter and it brought tears to my eyes. What a dear friend you have and how eloquently he described your struggles with this disorder. I think as RSD victims we often don't recognize what this disease has done to our minds and our bodies. The deterioration that we experience comes on so gradually that we seem to incorporate it into our everyday life and don't notice it's impact on us the way our friends and family do. That letter was a real eye opener for me. It made me stop and take a look at myself and what this disease has done to me. I must say it was not a pleasant revelation but a much needed one. Thank you for this post and I'll be hoping for better days for you...Jeannie

sorry you are feeling this way i hope you are able to have better days soon. i pray that you and the rest of us will one day find a solution to end this crappy disease. until then i hope you can stay strong and know that you are not alone. wishing you nothing but peace and pain free moments, jen

you got to see your rsd through someone elses eyes, and it is an eye opener for all of us. i often think i 'hide' my rsd well, but after reading your letter i see it more clearly. thank you for sharing.
i am sorry you are flaring all over and hope it calms down soon.
joan

thanks to you, Allen & your friend .... for this Letter shared

what a Blessing to have a friend who is so caring

may more Blessings Come & be w/ you & all suffering... esp. Relief

That was such a beautiful letter. It's so good to have friends like that to walk through this time of your life with you as well as the good times and know what you are going through.

I have thought of you, Mark, and Vicc lately. I was wondering how all of the guys were doing. I know though when someone usually disappears on here it is due to more pain or getting better. Most of the time more pain.

I hope you start seeing some better days and are able to hang around here with friends even if you can't get out with your other friends.

Ada

Hey there Allen! I too want to say I feel so bad that your RSD has kicked in so bad! I will keep you in my thoughts and prayers for sure. Thank you so much for your friends letter! wow.. what a eye opener to what we all have here.. plain "Pain, depression"! thanks again. you are missed here Allen! ((((hugs Allen)) Love, Desi :0)

Hugs Allen. I'm sorry you are having such a difficult time right now. I hope it calms down for you soon.

You are in my thoughts and prayers.

You all are the best! Dont know why I didnt get in here sooner and post up, cause ya all have made me feel mucho better.

I do have some things finally going in my favor, at least it looks like it at the moment lol. I went to a walk in emergency room clinic the other day, and they signed me up for a type of emergency insurance that is good for 3 months at a time, and also gave me an appointment to a pain/primary doctor.

They couldnt do much for me besides prescribe something to get my blood pressure down, but im grateful for even that. The doctor that treated me was the clinics Director. They have several clinics at each of the three hospitals, and it is a 6 month wait usually to get in. But because the director was the treating physician, he got the appointment set in 2 weeks!!

So I am a little relieved, and that helps keep the pain a bit down also.
This RSD has really been surprising me as of late. I was thinking it just cant get much worse than it is already, and low and behold it can, and does get worse.

I cant shake the feeling, and thoughts, that this company that owns and runs all these clinics and hospitals should be paying for my care since they are the ones that put me in this condition to begin with. Every time I have to go down to that hospital/clinic, it reminds me of the fateful day that the doctor looked at me and said Oops! Not, so sorry, or let me take care of that, just OOPS!

I can tell you that I would be held accountable for my oops, but these medical organizations, and doctors can nearly get away with murder in california with no repercussions. Well maybe a slap on the wrist for killing someone, but that is it really. The doctor that did the surgery on me actually caused the death of a woman 2 years after working on me, and they just warned him.

I really need to get over this, but it is sooo hard when you have lost everything, and feel like even your life is gone too.

Well sorry about the rant, just needed to vent a bit.
I hope no one else ever has to go through what I have gone through ever.

I am still feelin pretty cheerful.

It's hard to get over the fact that a person wouldn't be in the shape they were in had it not been for a QUACK.

Mine was a Osteopathic. I was sent they only so she could help several Drs. diagnose me. She popped all of my bones in my body. When I went to her I had TOS on the left side but it wasn't diagnosed yet. She brought it to my left side. I honestly think she broke my right arm. I have had 4 surgeries on that arm and have about 4 to go because of her. The good thing with her though, she was actually ran out of this town. I don't know by who but she was only here about a year longer and then I was told she was ran out. I would say some big wig that she did something too or to a family member. I tried to sue her but the lawyers said my case was so complex at the time they couldn't figure it out. After 8 years, now we have it figured out but it's too late to do anything with her. I believe though that God has a plan for everyone and some people don't want to know what he's got planned for them.

I am excited that you are getting to see a new Dr. I know what you have been through and am so happy that you are finally going to get some good help.

Your friend,
Ada