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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-18-2016, 06:49 PM | #1 | |||
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Senior Member
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Sophie,
Sorry if I alarmed you. I should've clarified. CRPS is not always sympathetically maintained which is part of why the name was changed to CRPS. I didn't mean that you'd advanced to sympathetically independent pain, just that it may have a different mechanism.
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"Thanks for this!" says: | Shay08 (11-19-2016), Sophie0513 (11-18-2016) |
11-18-2016, 08:07 PM | #2 | ||
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Junior Member
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Quote:
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"Thanks for this!" says: | Shay08 (11-19-2016) |
11-18-2016, 10:12 PM | #3 | ||
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Junior Member
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I may be overthinking this and definitely stressing out about this especially since I had to leave work! And I need to stop this until I get more answers or pain relief
But I was instructed to ice and I applied ice at least 4x a day so maybe this somehow pushed it from sympathetically maintained pain to sympathetically independent pain? Something else I should mention at my next PM visit. I may possibly be he most anxious person to ever post on this message board: |
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"Thanks for this!" says: | Shay08 (11-19-2016) |
11-18-2016, 10:21 PM | #4 | ||
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Junior Member
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Now wondering if I should get my feet checked out by a neurologist?? Not sure at this point. OKay I am now full blown anxiety attack! Done for the night and hoping tomorrow is a better day
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11-19-2016, 07:17 AM | #5 | |||
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Just sort it all out in your head, and make an appointment if you're worried. There's nothing more to it.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Shay08 (11-19-2016), Sophie0513 (11-19-2016) |
11-19-2016, 11:26 AM | #6 | ||
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Junior Member
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Thank you Marleen. Yes I agree that I need to calm down..I'm trying..may see if I can get a script for an anxiety med at this point.
I appreciate your input. Thank you again Marleen!!! |
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11-19-2016, 01:34 PM | #7 | ||
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Junior Member
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You are really in a predicament because you are trying to research everything about CRPS, but that only keeps your mind on the negatives in your life. Aim for balance. Set a period of time for the research and then spend time researching something that you would find very pleasant. I know it is not easy to tune out all that pain, but keep bringing your thoughts back to the pleasant. It is not easy, but it can help reduce your anxiety levels. Please keep in mind that CRPS is a very complicated syndrome. If doctors have not completely figured out how to help all of us, you are not going to find all the answers yourself. We are all different and we respond to treatments differently. All you can do is be aware of the different treatments available and when one fails, you try another. It is a journey that most of us know only too well. Keep us updated and don't worry about being the most stressed person posting here. At least you are venting! So now that you have finished reading this, take two minutes to think of something you find very pleasant, and hopefully you can bring down those stress levels. Shay |
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"Thanks for this!" says: | Sophie0513 (11-20-2016) |
11-20-2016, 03:11 AM | #8 | ||
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Junior Member
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I really appreciate that you took the time to reply to my concerns. Your suggestions are solid ones and I will do my best to put them into practice!!!!!
thank you again |
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11-20-2016, 05:10 AM | #9 | |||
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Member
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I was in pain for almost 3 years before I was diagnosed and apart from anti-inflammatories once in a while, I had 0 pain relief. It wasn't even addressed until I got diagnosed, just never talked about. My doctors (all specialists, orthopedists) were clueless. There is no better word to describe it, unfortunately. They all stood there and saw the symptoms, but just... I don't know had a black out, I guess, when they were looking for a diagnosis.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Sophie0513 (11-20-2016) |
11-20-2016, 08:15 AM | #10 | ||
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Junior Member
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I have been combing thru these threads and I have seen some of your earlier posts. You have been through a lot yourself and I appreciate your encouragement. YOu understand!
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