Hi Alison,

My daughter is 14 and has had RSD for 6 years. She does get kinda wobbly too and has needed to have me with her more than she would like! She always uses a shower chair in the shower and we have put bars up so she can hold on while hopping. She has also learned to get up slowly and take things easy when she is feeling a bit dizzy. She hasn't had to at home, but at the therapy pool, she uses a walker for more stability. Maybe instead of crutches, you could try that so you can go in the bathroom and around the house a little more grounded. Just a thought.

Our family sure knows what your family is going through and I am so glad you have found this site. It is very helpful and beneficial. I hope your parents read the posts and look for answers here too. I know I couldn't get through all of this without these people.

Let us know how you are doing,
Katherine

i am wobbly also and have taken some good falls ... i'm not sure if there is anything that helps, i think as soon as we take our mind off each step we are taking, we can easily fall and that is just the way it is. our bodies with the pain and the stiffening are off kilter and so we are prone to it.
joan

Hi Everyone.

I also find myself unsteady. I sort of tip over. It can happen at any time. I've also fallen and have messed up my knees. I don't have RSD in my legs, so this would need to be from the medication. I'm not surprised at all. I'm also on Neurontin. I am extra careful when going down steps. I don't know when I'll loose my balance.

I find it increasingly difficult to find words... If you know what I mean. I sort of say ummm all the time. It's hard in a business atmostphere... I try to find the words to say before I try to say them - so I don't sound like an idiot.