Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 12-08-2016, 04:19 PM #1
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Brightcloud View Post
I was having pain in the bunion and metatarsal area of my left foot. I went to a physical therapist in a major teaching hospital for help. After about 3 sessions with him, my foot felt better and I was hopeful for a resolution to my foot problem. However, after that my foot pain returned in areas that had never hurt before and I also had burning pain. He had no answers as to why my pain had returned. Finally, I realized what had happened. He had been using a steel tool on my foot (a technique known as instrument assisted soft tissue mobilization - IASTM) to break up adhesions/restrictions. It caused my RSD to flare. I was never asked if I had medical problems that might rule out the use of this harsh therapy. I am now much worse off than before I started physical therapy and angry at the supposed medical care I received and my insurance was charged for.

Of course, I stopped seeing this therapist when I realized what had happened. I have an appointment to see an ankle/foot orthopedist next Thursday. In the meantime I have been taking ibuprofen to try to reduce inflammation, using magnesium lotion on foot, taking vitamin C, and taking nortriptyline before bedtime. Sometimes also relying on generic Ambien for sleep. Does anyone have any suggestions as to what else I can do to reduce pain until I can see the doctor? Of course, I am trying to walk as little as possible as it hurts a lot to walk.

Can anyone help me? I would greatly appreciate it!!
No suggestions. I hope you can see your doctor promptly. Didn't you notice it was harsh while it was being done, then?
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Old 12-08-2016, 06:27 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,745
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,745
15 yr Member
Default

Didn't PT do assessment/ask about other conditions before treatment?

I had many PT sessions for repetitive injuries , it is always important to watch and ask questions about any treatment/therapies being used.
And if anything is a concern speak up, don't be shy , it is your body.
__________________
Search the NeuroTalk forums -

.
Jomar is offline   Reply With QuoteReply With Quote
Old 12-09-2016, 04:59 AM #3
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Jo*mar View Post
Didn't PT do assessment/ask about other conditions before treatment?

I had many PT sessions for repetitive injuries , it is always important to watch and ask questions about any treatment/therapies being used.
And if anything is a concern speak up, don't be shy , it is your body.
Yes, during the treatment, treatment can always be adjusted according to what you can handle. I had to have PT for 8 months because my upper legs were getting thinner (initially the right one more because I had a cast and knee surgery on that side). They first started with barbells and special contraptions, but that got too heavy fast and I couldn't bare it (I had RSD), so they did electro-stimulation and infra-red from then on.

I got no treatment for RSD back then, just the PT (there was nothing else they could do at the time as they had no clue what was wrong with me at that point) and by the time I was through my upper legs were thinner than my calves - and I have slim calves.

Yeah... those days were awful. But my point is, they can adapt your treatment during the treatment too, if YOU indicate it is not do-able.

Later of course they found out I had RSD but by that point it was too late basically to revert the disease in my legs as it had become chronic and disabling.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Old 12-09-2016, 05:16 AM #4
Brightcloud Brightcloud is offline
Junior Member
 
Join Date: Mar 2015
Posts: 38
10 yr Member
Brightcloud Brightcloud is offline
Junior Member
 
Join Date: Mar 2015
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by Jo*mar View Post
Didn't PT do assessment/ask about other conditions before treatment?

I had many PT sessions for repetitive injuries , it is always important to watch and ask questions about any treatment/therapies being used.
And if anything is a concern speak up, don't be shy , it is your body.
No, the PT did not ask if I had any other health problems or do any type of assessment. From what I have read, using steel tools (such as Eclipse and others) helps "save" the PT's hands. Helps to prevent them from getting carpal syndrome. So they are definitely looking out for themselves.

I do keep thinking that above all physical therapy should do NO harm. I am still angry at the abuse/pain he caused my foot and wanted to warn others with RSD about IASTM.
Brightcloud is offline   Reply With QuoteReply With Quote
Old 12-09-2016, 07:57 AM #5
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Brightcloud View Post
I do keep thinking that above all physical therapy should do NO harm. I am still angry at the abuse/pain he caused my foot and wanted to warn others with RSD about IASTM.
Thanks for the warning, but remember just about *anything* can cause RSD to flare-up so you can't say for sure it was this, even though it is likely. RSD is so fickle! And trust me, I know! I've had this for over 21 years now.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Old 12-09-2016, 05:06 AM #6
Brightcloud Brightcloud is offline
Junior Member
 
Join Date: Mar 2015
Posts: 38
10 yr Member
Brightcloud Brightcloud is offline
Junior Member
 
Join Date: Mar 2015
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by CRPSbe View Post
No suggestions. I hope you can see your doctor promptly. Didn't you notice it was harsh while it was being done, then?
I have had manual "hands-on "(no tool) PT that was uncomfortable but effective and had no after problems. I trusted this physical therapist in the beginning.
Brightcloud is offline   Reply With QuoteReply With Quote
Reply

Tags
foot, happened, pain, returned, taking


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuromuscular psysiologist finds soft tissue injuries in 100% concussion sufferers Galaxy1012 Traumatic Brain Injury and Post Concussion Syndrome 12 03-10-2015 01:18 PM
Soft Tissue Nerve Impingement (muscle, not spinal) axseptants Peripheral Neuropathy 2 05-16-2011 07:04 AM


All times are GMT -5. The time now is 05:56 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.