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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Pentoxifyllin

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Old 12-18-2016, 04:50 PM #1
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Has anyone tried it with CRPS? I'm asking because LDN has not worked as well as I hoped, and it's been 6 months even though I've heard it sometimes takes longer. I'm getting 10% relief from it and really want more. I have a doc appointment tomorrow and will discuss other treatments like DRG, creams etc. thank you!
Has your doctor ever talked about Neurontin (gabapentin) or Lyrica (anti-seizure medications)? Those are the common medications for nerve pain.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 12-18-2016, 06:01 PM #2
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Has your doctor ever talked about Neurontin (gabapentin) or Lyrica (anti-seizure medications)? Those are the common medications for nerve pain.
I've tried both but sadly they are not for me. Thanks CRPSbe!
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Old 12-18-2016, 10:41 PM #3
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Hi NYM,

Pentoxifylline presents some interesting possibilities. I had a pharmacist suggest it to me at one point but no docs interested in prescribing it. It reduces inflammatory cytokines, decreases microglial activity and also addresses microvascular changes. Sounds like something worth considering.

Did your doctors ever look at ketamine for you or possibly the neridronate trial coming up? That will probably be at multiple sites like the initial one was.

I hope you have a good appointment tomorrow!
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Old 12-19-2016, 06:16 AM #4
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I've tried both but sadly they are not for me. Thanks CRPSbe!
Oh, OK. Just thought I'd mention them, because often it's the first thing that is suggested, as it helps many cope with the pain better.

I'm sorry it's not for you, and didn't help.
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=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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