Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-22-2007, 05:41 PM #1
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Default Slovenia

....any of you been there?

thinking of adding it into my holiday...

am going to attempt inter railing with some people!!

basically it means you buy a card ($140) and can use a train as much as you want anywhere in Europe! for 5 days out of 10 so planning on getting a Ferry to Holland then going to Amsterdam, Berlin and then probaly Slovenia and then flying home. It's going to be a mega trip. I was originally going to go Amsterdam up to Denmark, Sweden and round but I think that's too much travelling.

As it is I think I'm pushing myself far too far, but hey, it's worth a try and the worst that happens is that I feel dreadful - well, hey, I feel dreadful anyhow and it might (Hopefully) cheer me up, and if not, the recovery weeks will be!.

I'm trying to not kid myself and the lucky people coming with me that it's going to be pushing myself too much, but I'm so fed up of "giving in" to the disease. We have decided to "hostel" it, but going to try and take my pressure mattress (new one should deflate) and will be on pressure cushions etc and as we can't use the hoist abroad till I can afford a new decent one which the evil NHS won't pay for (well, it's a *luxury* as it can be carried around with you) it's not coming with me. So taking a carer I know well (Becksy) and the board and sling and we'll manage somehow - might actually leave the board and she'll just have to lug me around, it's what she normally does as we can never be bothered to follow the b***** manual handling rules.

So, any thoughts?

Love ya!!

Froggsy!!! xxxxxxx

and if I remember, if any of you PM me your addresses I'll send postcards!! xxxxxxxx

PS It looks rad! and the exchange rate rocks !!!

Last edited by frogga; 07-22-2007 at 06:36 PM.
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Old 07-22-2007, 07:25 PM #2
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Default Wow Frogga!!!!

A REAL vacation--not a pretend one. You go girl Like you said you are in pain anyway, might as well see new sights and have some fun so if you are really down at any time you will have beautiful memories to to look back on and something to smile about in your mind. My Dr. wants to do a nerve block just before I fly so I don't have as many problems with dystonia, you might want to check with you Dr. Prayers for a wonderful exciting time
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Old 07-22-2007, 09:56 PM #3
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Default Go for it!

That is just so very kool... mmm amsterdam lol
sounds just so very adventuresom.. think of the memory's and hey take lots of pic's, you can take us with you.. lol that'll be fun
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Old 07-23-2007, 05:31 AM #4
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Thumbs up Yeah Baby!

Thats the way to handle the RSD.

I know you will have a great adventure that will bring many good memories

Im PM'n ya now

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Old 07-23-2007, 08:59 AM #5
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Default Hi Frogga,

I will go with you for sure. I have always wanted to go to Sweden and Denmark and Holland more then any other places out there.

I'll let you sky dive though and I'll fly the plane. LOL

Ada
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Old 07-23-2007, 09:51 AM #6
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Default

Frogga, you are truly amazing, you know that?? wow! wish I was going with ya babe!! ya-Hoooooooo! "Go Frogga"! :0) Have a wonderful time. I will pm ya when I get back up. I am having a bad day!!
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