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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Senior Member
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My attorney called today, and my remand hearing is aug 15th. Man I am nervous
![]() Since my doctor visits have been sporadic because of the lack of insurance, it has me a bit worried. I do have that visit to the clinic on aug 3rd, but what can you get from first visit? Maybe I can piece together some doctor, and PT records from before I lost insurance?? I know I am worse, but how do you prove it in a little over a couple weeks? Only I thing can think of is lots of prayers ![]() This sure has the potential of making my life leaps and bounds better for sure. ![]()
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. Gone Squatchin |
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#2 | |||
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Senior Member
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Dear Allen -
Start keeping a daily log on the computer. As the pain cuts in, describe it. As in interferes with your daily life, annotate it. By August 3rd, you'll have plenty there. When you see the new doctor, bring in that narrative along with a chronological breakdown of your injury and your level of function at the time, i.e., what you were doing before hand, what treatments you've had and what drugs you've been on, and how your condition has deteriorated over time. A year by year breakdown would do just fine. Put the information in there that comes to mind and call your pharmacy for a print-out of the meds you were on if neccessary: they are required to keep records to go back years, including even the names of the prescribing doctors. A few pictures of bright red, swollen limbs works wonders as well, especially if you wind up being not particularly symptomatic at the time of the appointment. Good luck. I know you'll do just fine. Mike |
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#3 | ||
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on the way !!! Mike gave great advice, plus be sure to add a copy of the letter your friend wrote, maybe some others can write a brief summary of how this has affected you, as they see it. Tell them because you didn't have money for medical care you needed you have to rely on your peers to support the changes in your health condition. They may or may not allow, but it is worth a try. Hang in there!!!Better days have to be ahead!!!
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#4 | |||
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![]() My Prayers are with you for a Victorious Day ahead... You have been given good advice... ![]() Gentle Hugs ![]() ![]()
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Live Well, Love Much, Laugh Often . |
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#5 | ||
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I know i dont know you... .One more thing i would recomend... is taking pictures... If you have a flare up... It may be useful... Reason being we arent always symptomatic... So if you do have days where you can physical see the flare i would capture that... Further proof of the pain you are going through...
I will keep you in my prayers!!! I am sure things will work out just the way they are suppose to.... Best Wishes ![]() ![]() ![]()
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Jacquelina . |
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#6 | ||
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Dear Lord,
Please help our dear friend Allen get through this time in his life with a positive outcome. Also, please comfort him as the task of trying to prove this illness is burdensome, but with your help he can overcome this burden. Amen Hugs. Let us know if you need anything more. I keep a daily log of my pain in a dayplanner that goes everywhere with me. I would also go back through this site and print your posts to show the doctor. You have posted numerously about meds and pain and life, use your posts to your benefit.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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#7 | |||
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Senior Member
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from the hearing, and the attorney thinks it went very well. I agree that it went well, and believe this time is it.
The attorney questioned me about the entire history of how I was diagnosed, and why, and how does it effect me. The VE had 3 different chances to give me a job discription I could do, and only came up with "one" that the judge kinda rolled her eyes at. A packing house computer order person?? LOL They let me really tell my story this time, unlike the last hearing. At the end they had my son come in and asked him some questions. I started to lose it at that point as it is pretty hard to hear someone else talk about what they see. It feels sooooo good to have this one behind me, win or lose LOL. Now it is all about the wait for the decision. This whole process is like one looooong nail biting cliff hanger ![]() Thank you all for your much needed, and appreciated support. Big hugs to my RSD family ![]() ![]()
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. Gone Squatchin |
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#8 | |||
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In Remembrance
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I wonder why the VE didn't come up with grocery store computer order person, or donut shop computer order person?
In Pa, one of those jerks told the law judge the claimant could stil be a fish lure wrapping person. If that is the only job they think you can do, I think you're in pretty good shape, my friend...Vic
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The great end of life is not knowldege but action. T. H. Huxley When in doubt, ask: What would Jimmy Buffett do? email: : . |
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#9 | ||
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Hugs right back
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#10 | ||
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Oh your post brought tears to my eyes. If that is the only job and the judge rolled eyes, then by golly, you made an impact and I couldn't be more happy to hear this.
It will be hard to wait for your post that says what happens, but prayers are definitely abundant from this household, and from what I've read other households here also. Hugs. Hang in there.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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