Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 07-23-2007, 05:50 PM #1
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Shocked Need Prayers

My attorney called today, and my remand hearing is aug 15th. Man I am nervous

Since my doctor visits have been sporadic because of the lack of insurance, it has me a bit worried. I do have that visit to the clinic on aug 3rd, but what can you get from first visit? Maybe I can piece together some doctor, and PT records from before I lost insurance??

I know I am worse, but how do you prove it in a little over a couple weeks?

Only I thing can think of is lots of prayers

This sure has the potential of making my life leaps and bounds better for sure.

__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Old 07-23-2007, 06:30 PM #2
fmichael's Avatar
fmichael fmichael is offline
Senior Member
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
fmichael fmichael is offline
Senior Member
fmichael's Avatar
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
Default

Dear Allen -

Start keeping a daily log on the computer. As the pain cuts in, describe it. As in interferes with your daily life, annotate it. By August 3rd, you'll have plenty there.

When you see the new doctor, bring in that narrative along with a chronological breakdown of your injury and your level of function at the time, i.e., what you were doing before hand, what treatments you've had and what drugs you've been on, and how your condition has deteriorated over time. A year by year breakdown would do just fine. Put the information in there that comes to mind and call your pharmacy for a print-out of the meds you were on if neccessary: they are required to keep records to go back years, including even the names of the prescribing doctors. A few pictures of bright red, swollen limbs works wonders as well, especially if you wind up being not particularly symptomatic at the time of the appointment.

Good luck. I know you'll do just fine.

Mike
fmichael is offline   Reply With QuoteReply With Quote
Old 07-23-2007, 07:17 PM #3
carose carose is offline
Member
 
Join Date: Mar 2007
Posts: 131
15 yr Member
carose carose is offline
Member
 
Join Date: Mar 2007
Posts: 131
15 yr Member
Default Lots of prayers

on the way !!! Mike gave great advice, plus be sure to add a copy of the letter your friend wrote, maybe some others can write a brief summary of how this has affected you, as they see it. Tell them because you didn't have money for medical care you needed you have to rely on your peers to support the changes in your health condition. They may or may not allow, but it is worth a try. Hang in there!!!Better days have to be ahead!!! Carose
carose is offline   Reply With QuoteReply With Quote
Old 07-23-2007, 09:55 PM #4
dawn3063's Avatar
dawn3063 dawn3063 is offline
Member
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
dawn3063 dawn3063 is offline
Member
dawn3063's Avatar
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
Default

Hi Allen,
My Prayers are with you for a Victorious Day ahead...
You have been given good advice...
You will do fine...
Gentle Hugs
Dawn
__________________
Live Well, Love Much, Laugh Often
.
dawn3063 is offline   Reply With QuoteReply With Quote
Old 07-23-2007, 10:59 PM #5
wildberry2277 wildberry2277 is offline
Member
 
Join Date: Jul 2007
Location: Minnesota
Posts: 129
15 yr Member
wildberry2277 wildberry2277 is offline
Member
 
Join Date: Jul 2007
Location: Minnesota
Posts: 129
15 yr Member
Note Hi there

I know i dont know you... .One more thing i would recomend... is taking pictures... If you have a flare up... It may be useful... Reason being we arent always symptomatic... So if you do have days where you can physical see the flare i would capture that... Further proof of the pain you are going through...

I will keep you in my prayers!!! I am sure things will work out just the way they are suppose to....

Best Wishes
__________________
Jacquelina
.
wildberry2277 is offline   Reply With QuoteReply With Quote
Old 07-24-2007, 01:45 AM #6
junk4myemail junk4myemail is offline
Member
 
Join Date: Mar 2007
Location: Near San Diego, CA
Posts: 230
15 yr Member
junk4myemail junk4myemail is offline
Member
 
Join Date: Mar 2007
Location: Near San Diego, CA
Posts: 230
15 yr Member
Default

Dear Lord,

Please help our dear friend Allen get through this time in his life with a positive outcome. Also, please comfort him as the task of trying to prove this illness is burdensome, but with your help he can overcome this burden.

Amen

Hugs. Let us know if you need anything more. I keep a daily log of my pain in a dayplanner that goes everywhere with me. I would also go back through this site and print your posts to show the doctor. You have posted numerously about meds and pain and life, use your posts to your benefit.
__________________

.

.
CHRISTINE
.



.


I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
junk4myemail is offline   Reply With QuoteReply With Quote
Old 08-15-2007, 02:06 PM #7
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default Just returned home

from the hearing, and the attorney thinks it went very well. I agree that it went well, and believe this time is it.

The attorney questioned me about the entire history of how I was diagnosed, and why, and how does it effect me. The VE had 3 different chances to give me a job discription I could do, and only came up with "one" that the judge kinda rolled her eyes at. A packing house computer order person?? LOL

They let me really tell my story this time, unlike the last hearing. At the end they had my son come in and asked him some questions. I started to lose it at that point as it is pretty hard to hear someone else talk about what they see.

It feels sooooo good to have this one behind me, win or lose LOL. Now it is all about the wait for the decision. This whole process is like one looooong nail biting cliff hanger

Thank you all for your much needed, and appreciated support. Big hugs to my RSD family
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Old 08-15-2007, 03:36 PM #8
Vicc's Avatar
Vicc Vicc is offline
In Remembrance
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default

I wonder why the VE didn't come up with grocery store computer order person, or donut shop computer order person?

In Pa, one of those jerks told the law judge the claimant could stil be a fish lure wrapping person.

If that is the only job they think you can do, I think you're in pretty good shape, my friend...Vic
__________________

The great end of life is not knowldege but action. T. H. Huxley

When in doubt, ask: What would Jimmy Buffett do?


email: :
.
Vicc is offline   Reply With QuoteReply With Quote
Old 08-15-2007, 04:07 PM #9
carose carose is offline
Member
 
Join Date: Mar 2007
Posts: 131
15 yr Member
carose carose is offline
Member
 
Join Date: Mar 2007
Posts: 131
15 yr Member
Default Allen

Hugs right back -- we have all been waiting for your good news. I know the battle hasn't been won yet, but we will continue sending prayers for a positive outcome. Hopefully, now that the stress of worry about the hearing is over, you will feel better mentally and phyically. It is hard to hear someone we love decribe us, I know I would like to think I am still the same person, NOT!! I've already had to listen to how I changed . Take care--relax!!Carose
carose is offline   Reply With QuoteReply With Quote
Old 08-15-2007, 07:02 PM #10
junk4myemail junk4myemail is offline
Member
 
Join Date: Mar 2007
Location: Near San Diego, CA
Posts: 230
15 yr Member
junk4myemail junk4myemail is offline
Member
 
Join Date: Mar 2007
Location: Near San Diego, CA
Posts: 230
15 yr Member
Default

Oh your post brought tears to my eyes. If that is the only job and the judge rolled eyes, then by golly, you made an impact and I couldn't be more happy to hear this.

It will be hard to wait for your post that says what happens, but prayers are definitely abundant from this household, and from what I've read other households here also.

Hugs. Hang in there.
__________________

.

.
CHRISTINE
.



.


I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
junk4myemail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Thank you for your prayers dolphin Reflex Sympathetic Dystrophy (RSD and CRPS) 25 06-27-2007 07:04 AM
prayers for Amy Burntmarshmallow Trigeminal Neuralgia 0 05-07-2007 07:06 AM
Need Prayers Curious Sanctuary for Spiritual Support 20 04-21-2007 10:29 AM
Prayers for Peg and her Mom DiMarie Thoracic Outlet Syndrome 11 03-21-2007 07:10 PM
I could use some prayers please sadeyesr4ever Sanctuary for Spiritual Support 13 02-13-2007 06:02 AM


All times are GMT -5. The time now is 12:31 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.