Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 07-25-2007, 11:11 PM #1
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

Hi Ada,

I really hope your PCP can help by recommending someone else. Ada I am very ill myself. My pain level is way down, I am very sick still. I am doing everything I can. You need to find a Lyme Literate MD. Hugs, Roz


Here is a article.


http://www.confrontinglyme.com/foreward.html

Last edited by buckwheat; 07-25-2007 at 11:33 PM.
  Reply With QuoteReply With Quote
Old 07-26-2007, 06:28 AM #2
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,543
15 yr Member
Arrow

Hello Ada

we do have a Lyme Disease forum here that isnt all that active re discussion, but does have a lot of very helpful info re Lyme

Also, one of our members BlackRoze has Lyme and has a wealth of info and experience related to it that may be helpful to you

Lyme can be very serious and it is oh so important to have knowledgable qualified professional care if you do in fact have this disease

hope that helps a bit with info for you
here is the link to the NT Lyme disease forum http://neurotalk.psychcentral.com/forumdisplay.php?f=91

Cheri
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
Old 07-26-2007, 09:55 AM #3
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Thank you Chemar,

I will go over and read on that forum and PM Blacckroze.

I have been so sick here lately. I called my Dr. and I see him as the last patient tomorrow so we can decide on turning my VNS off until I feel better.
I really don't want to do it. We had planned on turning it up Monday and he didn't get the call from the company on how to do it a different way to keep it from messing with my breathing. Now we may decide to turn it off.

I am going to try and find a Dr. to check me for it. Roz gave me a good article that explains the problems with getting help for it, but I am going to check and see if I can find someone who might know something about it.

Thanks again,
Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 07-27-2007, 10:12 PM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Chemar and Roz,

Thank you for you concern and help on the lyme disease.

I just wanted to let you know I saw my PCP today and he ordered bloodwork to see if I have it or not. He explained it to me but I'm no good at explaining it.

He called those places Erytherna Migrans. I don't know if I'm spelling this right. The man writes pretty good. A lot better then me but some letters I am not sure of. He said it will take awhile to get the bloodwork report back due to it going to Denver. He's hoping they don't cancell it as they did the 3 test the Immunologist ordered.

I'm glad he's doing it. I didn't want to have to go looking for another Oncologist.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 05-12-2008, 12:40 PM #5
BlackRoze's Avatar
BlackRoze BlackRoze is offline
Junior Member
 
Join Date: Jun 2007
Location: PA/MARYLAND
Posts: 57
15 yr Member
BlackRoze BlackRoze is offline
Junior Member
BlackRoze's Avatar
 
Join Date: Jun 2007
Location: PA/MARYLAND
Posts: 57
15 yr Member
Exclamation

Quote:
Originally Posted by dreambeliever128 View Post
Thank you for you concern and help on the lyme disease.

I just wanted to let you know I saw my PCP today and he ordered bloodwork to see if I have it or not. He explained it to me but I'm no good at explaining it.

He called those places Erytherna Migrans. I don't know if I'm spelling this right. The man writes pretty good. A lot better then me but some letters I am not sure of. He said it will take awhile to get the bloodwork report back due to it going to Denver. He's hoping they don't cancell it as they did the 3 test the Immunologist ordered.

I'm glad he's doing it. I didn't want to have to go looking for another Oncologist.

Ada
Sorry everyone that i have been missing Action over here for some time. I have been fighting infection after infection, finally i think i got the upper hand at the moment. So Sorry if i have let anyone down. But the good News is i'm back.. hugs missed you all..
__________________

.
BlackRoze is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Trip to Immunologist isn't wasted.... dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 1 06-20-2007 03:52 PM
Tell me about an Immunologist. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 1 06-14-2007 03:50 AM
EEG Today bams1414 Epilepsy 3 05-18-2007 05:36 AM
Today... colombiangirl1 Schizophrenia 0 02-27-2007 05:46 PM


All times are GMT -5. The time now is 04:55 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.