Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-03-2017, 11:41 AM #1
Shay08 Shay08 is offline
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Shay08 Shay08 is offline
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Quote:
Originally Posted by ahlevy View Post
I went to the pain management doctor and he just gave me lidocaine cream, which did nothing. I'm seeing a neurologist now and getting testing done to see if there is anything else wrong with my nervous system. In the meantime I'm up to 400 mg of Neurotin 3 times a day. He wants to switch in Cymbalta for my Wellbutrin as well. I am getting a wheelchair because I can't walk to my classes without wanting to collapse on the sidewalk and start screaming in pain. When I'm home though, I won't use it.
Sorry the lidocaine cream didn't work for you. It didn't help me either, but at least your doctor tried. Let's hope for the best with the Neurontin and possibly Cymbalta. I think that most of us have gone through trials of a variety of medications to find something that works.

The wheelchair should help you deal with your classes and as I mentioned previously you still have to keep moving, so make sure you don't give in to the temptation at home to start using it. I personally know how tempting that can be. Stay strong. Hope you feel some improvement soon.
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Hotfoot53 (04-03-2017), RSD ME (04-04-2017)
Old 04-05-2017, 10:25 AM #2
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Becca71 Becca71 is offline
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I think mine is progressing too. Moving to the other foot. Have an appointment tomorrow and will talk with my doc. So scary to think of it in both feet.

I take Cymbalta and find it does help with the pain. The Neurontin helps a lot, and you have plenty of room there to go up a great deal on the dosage if you and your doctor feel you need it. I hate all the trial and error with meds, and changing things out with them, etc.

I've tried out the iphone app recognize some, this is a good reminder for me to keep using it.
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