Wonderful thanks Ada.. puzzle 19 has some realy good information as well.. but I have found very little else and no clinical trials dealing with or reporting with it... Dr H's puzzles paint a grim picture and for some reason my doctors don't take his literature very seriously. There is also Dr Schwartz's "RSD with distant effects", I forgot about that one too.. here:

http://www.homestead.com/robertgschwartz/page5.html

I need to bring stuff in for my doctor to see.. one doc says it is in my organs others are going ok but wheres the literature.. like with the artical on spread it opened their eyes.. dr S's pages are just too brief... hey I will try Hooshmands references too.. hmm tks again

Sandra

My chest is scarring me and I wonder why my doctors are not taking it seriously, like they don't believe it can happen like this and lord knows WCB isn't taking it seriously.. I don't want to prove it to them by having a heart attack.

Any clinical trials I wonder?

I know there are a lot of people on here that don't like Hooshmand. Unfortunely we had lost some good people off of the Braintalk forum due to people putting them down for going to him. I realize everyone has their own opinion and that's ok.

I have never been to him. I do have his book and I bought one for my PCP for Christmas about 5 years ago. I figured if he could learn one thing from the man to help me if was worth it.

My Dr. read the book and did a lot of his medical care that was suggested and helped get me into remission.

I think too now that he is retired and new things are being done for RSD that Drs. think his work is most likely outdated. I don't believe that and have seen some good around here due to blocks and TPI's and certain PT.

I would say there should be more out there to help you and I'm sure more will come on here with some good info.

I have been told I have it in my right side, and my pelvic area so I do know it can go internal. No doubt.

Hopefully you can convince your Dr. that it can go internal.

Ada

Bumping this up... hoping someone else can point us to more on organ involvement!

--piedmont physical medicine --has a RSD section and it talks about organ involvement. Carose

Thanks Carose that is the same website as the one in post #2 Dr Schwartz's page by piedmont.. a good resource.. but also not so credible somehow as he is trying to sell ointments etc.. but let me tell ya I'd give a heck of a lot up to see either of these two doctors.

Just spent another day in the ER feeling like something was gonna burst under my right ribs comes and goes in waves bad nasty happenin that no one seems to know what's doin it.. been happenin for quite a while but it realy escalated and scared me enouph to go in.. found out nothing of cource cause no one knows anything.. and they don't connect the dots when they should. I'd sigh but it hurts..

Hugs ya'll
Sandra

Sandra
Just a shot but have they checked your gallbladder??
I had to have mine removed a couple of years ago. I had many tests and it wasn't until they had me do the digestive test where I swallowed some bad tasting stuff and they took pictures of it that they found I had gallbladder disease. I do remember that it was painful.
Hope you get some relief soon
Jeanne