I know there are a lot of people on here that don't like Hooshmand. Unfortunely we had lost some good people off of the Braintalk forum due to people putting them down for going to him. I realize everyone has their own opinion and that's ok.

I have never been to him. I do have his book and I bought one for my PCP for Christmas about 5 years ago. I figured if he could learn one thing from the man to help me if was worth it.

My Dr. read the book and did a lot of his medical care that was suggested and helped get me into remission.

I think too now that he is retired and new things are being done for RSD that Drs. think his work is most likely outdated. I don't believe that and have seen some good around here due to blocks and TPI's and certain PT.

I would say there should be more out there to help you and I'm sure more will come on here with some good info.

I have been told I have it in my right side, and my pelvic area so I do know it can go internal. No doubt.

Hopefully you can convince your Dr. that it can go internal.

Ada

Bumping this up... hoping someone else can point us to more on organ involvement!

--piedmont physical medicine --has a RSD section and it talks about organ involvement. Carose

Thanks Carose that is the same website as the one in post #2 Dr Schwartz's page by piedmont.. a good resource.. but also not so credible somehow as he is trying to sell ointments etc.. but let me tell ya I'd give a heck of a lot up to see either of these two doctors.

Just spent another day in the ER feeling like something was gonna burst under my right ribs comes and goes in waves bad nasty happenin that no one seems to know what's doin it.. been happenin for quite a while but it realy escalated and scared me enouph to go in.. found out nothing of cource cause no one knows anything.. and they don't connect the dots when they should. I'd sigh but it hurts..

Hugs ya'll
Sandra

Sandra
Just a shot but have they checked your gallbladder??
I had to have mine removed a couple of years ago. I had many tests and it wasn't until they had me do the digestive test where I swallowed some bad tasting stuff and they took pictures of it that they found I had gallbladder disease. I do remember that it was painful.
Hope you get some relief soon
Jeanne

After reading this post asking about organ involvement etc... I found myself wondering what exactly is out there now after many years of having rsd (it's been many years) so i did a quick google on pubmed by typing in only the words reflex sympathetic dystrophy after i went into the pubmed site ... and I was surprised that 152 articles came up.... i didn't read more than a few but I did notice a few that mention organs along with rsd....

(i s'pose one of the interesting things too is that quite a few of the abstracts were recent ( this year or last year) and i was smiling to see that rsd is still being used as a term and not always crps etc...)

Anyway, there is stuff out there, here and there, and the neat thing is to see that yes, rsd is being studied and written about all right....and quite a bit the last year or so.....that's good.....

i think quite a few of rsders have symptoms of organ involvement......

Ina

Hi everyone.
I hope you don't mind if I put in my 2 cents worth regarding Dr Hooshmand. I would really appreciate if the website that is still available for everyone to see was updated! Many topics have not been reviewed for nearly 10 years despite much changing in that time. Of course there is still some very relevant material but some definitely not.
Many newbies go straight to his site as it is well advertised and I do think it is wrong and somewhat disrespectful of his site admin to allow it to be viewed the way it is.
Of course I do not know him, never been to him so can not comment on his skills , manner etc but now, especially if he has retired he needs to put some work into his site which get thousands of hits per day!
Bye for now *as I get off my soapbox* sorry
Tayla