Your fed up--OMG---I don't think fed up is strong enough, but all day I have tried to think how I would feel and there are not words So I lit a candle for you and prayers are being sent to your whole family, may peace and healing surround you all!!! Carose

Dear Frogga -

Just cannot believe how you keep up your humor and all around wits with everything you've been through of late. You continue to amaze.

I don't suppse it's too much to ask whether anyone at the NHS has been able to order an MRI of your cervical spine, or will that have to wait until you seen the neurologist in September?

You're in all our thoughts, but you knew that already.

much love,
Mike

Frogga, you my dear are my hero.. I mean to still come here and post and tell your story still amazes me so much. Like Michael said;you Keep up that "humor and all around wits,"with everything you've been through, just amazes me also! I love you so much. Your a beautiful, bright and very pretty 21 year old young Lady, and it's just not fair to have so much pain, junk happening to you and NO it's NOT your fault, you have every single right in the world to feel like you do! I do NOT know what you are going through, my dear friend, but I want you to please know that I am here for you Frogga. Well, sweet one please post and let me and the other friends know what we can do to help you to get through this no good for nothing RSD. vent, cry, cuss.. we are here for you always.. love, thoughts & prayers to you my dear, lovely friend from the Uk Love, Desi {{{{Gentle, loving hugs Frogga}}}}}}}}}}

Hey Frogga I'm glad to see you are keeping your usual good spirits, regardless of what life throws at you.

It's sweet that you make such excuses for your mom and sis, but come on! You ARE their family, not "just a patient". I wouldn't want my nurse to treat me that way, but my own mother or sister?!? sheesh!

Keep us posted, hon. We'll be your support system, like always

Many gentle

Hey Rogue,

How are you keeping? hope you are doing ok? You've been abit quiet?

I think that's what gets me. Mentally I can cope with alot but I can't handle the constant put downs from mum and Charlotte - It infuriates me that if it was the other way round then, being honest, I might resent them a bit but I would understood they need help. I have needed feeding for 2 years now and Char has fed me 3 times, she has stormed off and left me naked if I say anything like that she is hurting me when dressing me, I cried when my did my legs this morning and she stormed off half way through then did them 3 times as hard and is not talking to me because I then spent the rest of the day incandesant with pain and rage. She is also not talking to me over the catheter issue and the wheelchair issue (for another post). AGH! I wish I could make them understand that this is not my choice of life - and they don't live it so they can't understand. I am tempted to move out for the rest of summer. It is so hard living with RSD anyway but they just don't see that there attitude doesn't help. I know mum can't handle me getting worse, but still!!

Love

Frogga xxxxxx

Thanks Desi, you are great! I do think of this as such a part of my family - one day I hope to meet all or as many of you as possible! It would rock. I just wish things were different. I just want my life to become normal and for things to change. I just want things to go back to how they were - I keep thinking geez I complained when I couldn't walk but had a smll amount of arm movement, but to lose it all... it's just tough! but I suppose life has to go on, I just wish it was different. I especially wish my mum and sisters attitudes would change.

Love ya

Froggsy xxxxxx

Hey Micheal,

Thanks, you are such a dear!

Come ON!! The NHS won't do an MRI unless I'm in hospital otherwise it's a 2 year wait, even after my grandmother developed lung cancer it was still, STILL a 3 month wait after developing bloody spinal cord compression!! IN HOSPITAL! I have to wait to see this neuro before I can have one... stupid NHS! it drives me nuts...

Are you ok?

Thanks so much. I am just so frustrated and no one will listen to me.

Love

Frogga xxxxx

Hi Frogga,
What happens over there if you presented to an emergency room?
If you presented here with all your symptoms you would have an MRI within hours.
I just don't understand how they can ignore such significant neurological pathology and not seek to find the reason.
Surely it would be cheaper for them to find a cause, treat it if possible than support you as they have to as a quad.
I am so sorry for your predicament--- as a nurse it makes me so angry when I see such shocking treatment.
Thinking of you
Tayla

Hey Carose, you get through it because you have to get through it. There are times when things are really tough and mentally they suck, like at the moment! which is just so frustrating. But I will get through it. I just wish things could be different. I am still so jealous of my normal friends being able to do normal things.

Hope you are doing better

Love ya

froggsy xxxxxxxxxxxxxx