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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-02-2017, 04:27 AM #9
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Join Date: Mar 2009
Location: Belgium, Europe
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Originally Posted by catra121 View Post
If they approve the trial they will approve the final unit. When they denied it back in October they said it was because the procedure wasn't "proven"...and they sited that it had not been PUBLISHED. It is FDA approved for CRPS...so it's not an off label use or anything like that. My insurance carrier was the only one at the office denying the treatment (not just for me...but any patients with the same insurance). Now that it's been published they have been approving it...so hopefully that means smooth sailing at this point. Fingers crossed anyway.
Well here's to hoping they will approve the trial then! Gosh, why does it have to be so complicated all the time, right. I mean, yes, I fundamentally understand, but from a patient's POV it's tough!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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