roz...here is a link to the thread i made on how to post pics here on neurotalk.

http://neurotalk.psychcentral.com/showthread.php?t=7728

or if you want...you can email me the pic and i will post them for you.

lol...nessa..i didn't see your post.

Hi,

Does anyone else have this SX??

I am going to email Dawn to see if she will post a couple pictures for me?

My pain levels are down but something else is seriously going on. I test postive for R/A by 3 positive blood tests last year. The 3 Rheumy. Docs I saw told me in my case it is not R/A and that's it a Neuro problem. I could be wrong but I don't think blood blisters are a sign of R/A.

After seeing a few at R/A specialists I tend to agree with them. I don't look like I have R/A either. I have worn a sx 6 ring since I was in highschool. Much Love, Roz xxx

Hello Roz,


It is because of these lesions which have ulcerated that I have had so many surgeries in the last few years.
They aren't blood blisters, they are just areas of skin that breaks down, ulcerate and gets infected over and over again.
I have photos too but like you getting them onto here is just not within my capabilites
I am told that they start with subcutaneous bleeding and because the nerve endings are so scrambled, they do not know how to heal.
Cheers
Tayla

I started getting these a couple of months after I was dx with RSD. They began showing up on one leg and as the RSD spread, so did they. They became sores almost right away and now, 4 1/2 years out. I have them all over, sometimes there's a lot of them, sometimes just a few and some turn into sores that will take 2 weeks or more to heal up. I'm thankful that none of them have turned into huge sores or anything. For 6 months now I have had 2 sores on my lower right leg that won't heal at all. It sucks, but as long as it doesn't get infected or get bigger, I don't care.

Hugs,

Karen

Hi Everyone,

I emailed Dawn a photo I hope she is able to post it. Much Love, Roz

Roz,
I have seen this with our family. Something else too...along nerve line like a shingles pattern, but not.
It is tiny blood blisters mainly on the finger tips or finger/hand....the others are along a nerve line and can actually scab.

Mine I get on the upper trapizius area, De her fingers, my son anywhere.
I can feel them along my upper back, little scabs the most.
My son actually got it on the rhemboid line almost a shingle, but blood blisters.

So I think it is tips of nerves,,,,they react to our screwed up hyper nerve activity and BINGO, that is what pops out....

Just my brain storm theory how we relate it to the Doc's as they scratch their head.

Di

[QUOTE=tayla4me;129430]They aren't blood blisters, they are just areas of skin that breaks down, ulcerate and gets infected over and over again./QUOTE]

This sounds exactly how mine are, too. Good description!

When mine start to clear up, they then get covered by large amounts of "layered" dry skin. Does anyone else have theirs do that when they clear? Then, of course, the process just begins all over again.

My doctor prescribes me two different cremes for these, which work well in combination to lower the discomfort these cause. One is an antibiotic creme. If anyone is interested in knowing what these cremes are, please ask and I'd be more than happy to tell you, although I know one of the biggest issues us RSD'ers face is that what works for one person, doesn't necessarily work for another.