Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-18-2017, 08:02 AM #2
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Originally Posted by Becca71 View Post
But what is interesting is the doc that did the procedure said he could also offer SCS (not interested ) or Bisphosphonate infusion, which can help with pain AND bone loss. The info he sent was pretty promising. I remember some people here use it, right? Info? Side effects?
In Belgium once you've passed stage 1 (calcitonin), you enter the next phases of treatment which if you go the route of rheumatology are bisphosphonate infusions. My case is such a bad one that at that point in time when they first saw me, they immediately hospitalized me and gave me 5 infusions over the course of a week. Normally, you only get one, spread out if there is a need for a second one. So that should tell you a bit of where I'm at.

But that didn't do much either (except help with the bone loss).

So I have had to live with it.

Best of luck to you. In Belgium it is much more of a treatment in the sense that it is practiced here for decades already and that it seems to now only be coming to the US. Odd, that.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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