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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hey all...
Well, I'm fed up! Ok.. for newbies. I have full body RSD, am 21, at uni and am in an electric wheelchair. I had an accident 3 months ago where I fell from my wheelchair and landed on my head, causing severe spine problems and making me lose all use in my arms and hands. I'd started to get a tiny bit of use and movement back in my right arm but it's gone now and it's just died. It's horrible. My jaw and face are so tight I can barely even suck/ eat yoghurt. The migraines are continuous, the visual problems are making me almost unable to see and with double/ triple vision. The dystonia is now causing my whole body to shake and my feet are curling into themselves more and more (will get more pics, but they are now balling themselves in) and my hips are setting. We discovered I now have no spinal movement and it's so infuriating. Everything is burning so much, my blood pressure is through the floor etc we are trying to keep me out of bed so I don't go back to bedbounf but, as Ness knows, it is very tough! To top it all my mother just doesn't get it, she tries so hard but she just keeps thinking I can think myself better or something, which is infuriating!! It's not my fault I got ill... but she doesn't get it. AgGGHHH!!!! So mums bitching at me and I have no use from my head down and now my eyes, brain and jaw have given up. This is a nightmare!! AGH!! Love ya Froggsy xxxxxxxxxxxxxxxxxxx |
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