Thanks Rigman,


You're doing the right thing staying positive. Healing is possible. Some of us have found it comes in tiny increments. Rejoice in those. They accumulate over time. I had three foot/ankle operations including peripheral nerve repair for traumatic neuroma and spent a year on a scooter. My recovery did not happen quickly. But it did come. Sometimes I was just grateful I was able to do exercises and prevent more loss when I didn't see "progress".

Get that appointment and let us know what happens. Maybe ask about neridronate infusions too. There is a clinical safety trial, meaning no placebo, going. Neridronate has good results and current use in Europe. It is recommended early on so now would be a good time to check.

Here's Dr Sean Mackey from Stanford.
Treatment and Research: What's New? - YouTube

And here's Dr. Pradeep Chopra.
Pradeep Chopra MD speaking at RSDSA's Learning to Live Well with Chronic Pain - YouTube

Do NOT allow a PT push you to what you feel is too far. Trust your body and what it is telling you. Yes PT is going to hurt to a degree. But creating massive pain is actually NOT a good idea in PT. You do want to keep moving as much as possible.

As far as the neurontin. Many find it helps a lot with the burning, but you may need a higher dose. I'm NOT a dr. but for me I had to take a great deal more. So its ok to go back and say that its not working, and see if they can give you more, you are on a very small dose (3600 is the top dosage) if you are tolerating it.

Many find that meds like Percocet don't do anything, but it is still common to try them in case they do help. You still have, as others mentioned, many other options to try as far as medications. In addition there are different procedures they can try, if you are open to them. Your dr. may offer them, things like a sympathetic nerve block. Go to RSDSA to learn more about the disease and different treatments, etc.

Hi and Welcome. I am sorry you have rsd but am glad you found this forum. I have learned to much here from other people's experiences with rsd. I also have learned so much from all the great information posted here. I have had rsd for over six years now and have learned that having a good pain management dr to help manage the pain and a good psychiatrist to help manage the depression and anxiety from having rsd helps me deal with better with rsd. Also having a great support group like the one here at NeuroTalk has helped me immensely. Hoping you find some comfort in knowing that you are not alone. Hugs and Prayers.