Hey
Thanks for the vote of confidence
I can't say this has been the most pleasant week of my life but the pain reduction certainly helps when the mental spaciness rears it's head

Joan, Jeanne, Roz,Hope , Desi
Thank you for the words of encouragement.It means a lot to me
I also wish that everyone could get a taste of this stuff.I am becoming sold on it's value for all of us!!!!

Joan- that is soooo very interesting - there must be something to it.I mentioned it to my PM doc yesterday when I saw him for my one week check up.He didn't say anything about repeat hallucinations- only how to change the content next time as they are a little weird .However I am certainly going to do a little research on the matter now that I see the experience of repeat hallucinations has been replicated, if only by us - very interesting stuff!!!!!! PS .ketamine is often used in pediatric surgery

Mike - when we have lunch, and I tell you exactly the(creepy) nature of my hallucinations you may not look at it quite that way or maybe you still will .I have actually had ketamine as an anaesthesia every time I have had a block so my hallucinations and their their same bizarre content have been more frequent than just yearly!! I am working on figuring out the code(don't ask) - there is some metaphysical formula that I am destined to find the solution for and that is just the part I can share right here .Good stuff that ketamine


Will keep you posted on the much more important factor of pain relief
Doing this mini- trail has got me beyond excited for the potential of this drug !!!!!!

If only we could all move to Australia and get medical access to the wide awake coma treatments through the health system - we would all be feeling so much better-what a nice dream that would be


Peace

GnP

Bizzare they are continuing... great that it is working long may it last WOOHOO!!! GO YOU!!

that rocks !xxxxxxxxxx

Thanks girl
You are always thinking of others when you have so much on your plate
Your heart is so very large indeed .
If anyone deserves to be cured - it be you

Mucho love

GnP

Hi GNP I am so glad that ketamine is working for you, where I am I find they tend to just do blocks till they stop working then tell you to live with it and treat the symptoms.. it sounds like the way to go is still to treat the source and that is what they are doing with the ketamine yes?

Hugs GNP I'd join you in Australia if I could.. hey have you heard from Laura from vancover? it seems to me she was looking for you after the BT1 crash she was going to germany for the full treatments then.

Be well
Sandra

Yo GnP

Would your dr consider you on a daily ketamine regime?

I seriously swear by it - it has made a definete improvement to my quality of life and even if that is all it has done then at least it is helping - much better than morphine or any other of the pain killing drugs - and I've tried them all. You can take pretty large oral doses (ok. I can) and not have issues and you don't get the out of its/ highs/ lows/ confusions/ depression/ appetite issues associated with many opiates. I really do feel that you should ask if it's a possibility!!

long may the relief continue! and I hope the drs start to use ketamine properly soon

love ya

froggsy xxxxxxx

Hi everyone,

Gnp-- I wonder if my hallucinations are similar to yours.
I don't usually have them anymore as I recognise earlier to ask for the infusion to be turned down but they are always the same. All I can describe them is as being very "psychedelic" Bit of a wild trip the first time but now I relax about it because I know they will end very soon.
Tayla

What doses are you given by infusion and over what time? I just don't appear to have ever had hallucinations from it... (maybe I hallucinate that I don't hallucinate?) or is it because it's oral and not IV? I take up to 125mg a day.

Bizzare!!

Love ya

Froggsy xxxxxxxx

Kinda off-topic, or maybe not,

I live in my recliner 24/7 and watch lots of TV, so much that reruns have forced me to programs I normally wouldn't watch; like the news, which is just reruns on a half-hour loop. And cable news celebrates celebrity; most of us probably know more about Brittney Speers (sp?) personal life than your child's. eccchhhh! But guilty. I don't want to know that about my daughter.

And doctors bow to celebrity. Wrestlers getting massive scrips for steroids; a (late) celebrity apparently had access to drugs while she was in detox; and is it possible that a singer/dancer with RSD could find a doc willing to say its not RSD while giving here overdoses of ketamine?

I don't know the kinds of hallucinations k might bring on, so I don't know whether it might be responsible for a couple of interviews the cable news shows used to savage Paula Abdul; they said she was drunk in the ones where she appeared giddy and high.

I've been drunk a few times and my memories are of brief periods when I felt like Paula Abdul acted, but of much longer periods when I wasn't happy at all (even before the hangover). If P.A. is my kind of drinker, those interviewers had only a 30 minute window of opportunity, then the alcohol really takes over and she wouldn't be "fun" anymore.

I don't know about ketamine hallucinations, but there was a time when I paid a generous $2.50 for a hit of genuine Orange Sunshine. and I was happy as Paula for hours. DISCLAIMER: I do not advocate the use of LSD, if for no other reason than you don't know who made it or what's in it.

Would knowing she has RSD (if she does) affect production decisions? Could it cost her some lucrartive contracts? I suspect it could -- and would. If I were P.A., I would go with the arthritis story and lots of ketamine. Hell, I'm me, and if ketamine could relieve the pain from my other injuries AND the RSD pain, and if I had the money/celebrity, I'd do it in a heartbeat.

O/T or not? Is it possible that Paula Abduls doc lied when he denied she has RSD and is he now giving her "celebrity doses" of ketamine? Can anyone who tried ketamine relate to that kind of giddy high we saw on TV? I it possible P.A. might be harming herself with excess ketamine? I think I would trade 10,000 of my tomorrows for a few hundred really good ones...Vic

Where do I begin..
First Sandel yes ! Last time I heard from Laura she was thinking most definitely of going to Germany .I have not heard from her in quite some time .I have no idea if she ever went through with it.
I hope we haven't heard from her as she is cured and out there enjoying her life.That would be my wish for her

Tayla - we would have to discuss our hallucinations at length in a "judge mental free zone" .We could compare where realities begin, end and a place where dimensions transcend one another without a second thought as to whether this could possibly be or not be - and what about those white stucco walls - what is up with that
So yes I am up for it - wouldn't it be cool if they were the same

Frogga .I am definitely building up a tolerance to the ketamine. I know it isn't stored in the body - I feel absolutely fine the next day - it's as if I haven't taken any at all before - but when I do take it I have grown accustomed to the feeling so it is much easier to handle.
I am not sure about the daily thing. First,I am not sure if my doctor offers it that way .
Second ,as I am still driving and mobile ( knock wood) this is not a drug I would feel comfortable driving on - Although I am accustomed to it - it does have some side effects that I would not be comfortable with while driving bottom line.I just won't risk it .
So thats a road I would have to cross when and if I get there - pain relief vs. independence . now there is a conundrum indeed!!!!
And yes I have only had intense hallucinations through infusions or in surgery.

Now Vicc - yes P.A does have RSD - It is fact.LA is a small town and the number of RSD doctors and cottage therapists to go around is not that large .
We all share many of the same doctors and or massage therapists or some treatment person or another .
If people all recall the history of her coming out with CP - it was not really a choice - it was a diversion .It happened when she got her hand caught in the cookie jar with that young contestant on AI and all of a sudden the sob story of her 24 year battle of CP and my goodness RSD all a PR attempt to take the focus off her very deep troubles over at AI.
She even did the cover of People - all the while she was being accused - with excellent proof of having sex with a contestant - talk about odd behavior
She does not want to be the poster child for many of the reasons you say- Vicc because she is out of it- This is Just my humble opinion and a few others - you need only watch her E true Hollywood story to see a women who is not all there with twitches of someone on too many meds.
Now having been on ketamine I don't think it is a "happy drug"- maybe she is on too many narcotics or something like that - this ketamine does not make you particularly
charming nor social - but then again mixed with a cocktai l of your own design with no rules , what do I really know


I hope I have that all covered

and so glad to hear from you Vicc

Peace

GnP

Hi all,


Frogga, I would imagine that the hallucinations are far more likely to happen on Intra-venous Ketamine. I was having oral Ketamine a few years ago and never got the slightest "buzz" from it.
It is a place called "the K-HOLE" in street terms. These hallucinations are what are aimed for but they are only sustained by taking repeated and large doses as Ketamine is very quickly absorbed by the body, it has a very short half life which is why it is so safe to use under supervision.
It is interesting that after all these years I still do respond to it which makes me believe it is difficult to become tolerant to it.
I wonder if because the outpatient dose is given and then you go home whether it is a large once off dose as compared to the slow titration that an inpatient treatment affords?
I would love to know how much is given and how long you stay in the outpatient department before you are discharged?
Cheers all
Tayla
ps- Frogga, I usually have my infusions running at about 6-8 mgs per hour which would be equivalent to approx 200mgs a day but being IV it does have a much more apparent affect than oral.