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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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CRPS and other issues

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Old 09-16-2017, 09:44 AM #1
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Default CRPS and other issues
I just found Dr. Gertson's paper on CRPS written in 2015. He elaborates on all the other issues that are involved with CRPS. I have several of these issues all which started after the CRPS injury. https://rsds.org/wp-content/uploads/...Depth-CRPS.pdf

One is dematological. I no longer can control the "rash" I have on both legs, which is identical in description and photo to what is in his paper. The burrowing sores, leave circular brownish red marks. My dermatologist called it eczema, but it is not at all like it. Does anyone else have this?
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Old 09-17-2017, 10:01 PM #2
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I'm not so sure about this "paper" as far as saying MS and CRPS is the same?
But CRPS has many co-morbid conditions. I have a small rash on both feet that the Dr. called a CRPS rash. But it isn't large and nasty, thank goodness. I've seen pics of bad ones and ones that get infected, etc.
If you feel strongly it isn't eczema but CRPS related then see the pain doc instead of derm. Cause frankly a dermatologist isn't going to know what to do IMO.
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Old 09-18-2017, 10:13 AM #3
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Becca, I am going to take this report to my PM doctor and put my pictures and my medical info with it. I noticed that the rash I have with the sores has one curious anomaly, hair! I had laser hair removal on my legs and feet, yet there is hair only growing where the rash is on both legs.
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Old 09-20-2017, 09:19 AM #4
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Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.
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Old 09-20-2017, 09:33 AM #5
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Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.
So true!! And don't forget the crazy nail growth too!!
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Old 09-20-2017, 03:25 PM #6
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Default I thought it was me being bass-akward weird :)
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Originally Posted by Becca71 View Post
Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.
I'd always heard too much hair / long nails / hyper sweating. Not my thing tho. I'm a minimalist My right arm is as bald as a new born. I can get hot & my arms are still cold and dry. The backs of my hands sweat tho. Charming

Not to hijack, but only have typing ability for a few more seconds. Anyone try Namenda (memantine) and want to share stories?


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Old 09-20-2017, 09:28 AM #7
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I'm not so sure about this "paper" as far as saying MS and CRPS is the same?
But CRPS has many co-morbid conditions. I have a small rash on both feet that the Dr. called a CRPS rash. But it isn't large and nasty, thank goodness. I've seen pics of bad ones and ones that get infected, etc.
If you feel strongly it isn't eczema but CRPS related then see the pain doc instead of derm. Cause frankly a dermatologist isn't going to know what to do IMO.
I did not see where he said that MS and CRPS were the same. He did say that he treated nine patients with both MS and CRPS and they showed improvement with treatment. He did say that he thinks Fibromyalgia and CRPS are the same...not sure if I agree with that one!
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Old 09-20-2017, 09:32 AM #8
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Originally Posted by BioBased View Post
I just found Dr. Gertson's paper on CRPS written in 2015. He elaborates on all the other issues that are involved with CRPS. I have several of these issues all which started after the CRPS injury. https://rsds.org/wp-content/uploads/...Depth-CRPS.pdf

One is dematological. I no longer can control the "rash" I have on both legs, which is identical in description and photo to what is in his paper. The burrowing sores, leave circular brownish red marks. My dermatologist called it eczema, but it is not at all like it. Does anyone else have this?
This "paper" is just power point slides from one of his talks. There is a great article from Dr Getson in the RSDSA summer 2017 newsletter talking about spread and other manifestations (I sent a copy to my dr). Here is the link to it https://rsds.org/wp-content/uploads/...ll-Edition.pdf
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